Forum Discussion
Deanne
12 years agoMember
It maybe that you will never get lymphedema but unfortunately even the doctors do not really understand enough to know who will and who will not get it.
If you are considering getting a garment make sure that you are measured and fitted for it by someone who is very experienced (check they are registered with the Lymphedema Association).
Also if you have never had a lymphatic massage by someone trained in it (again check they are registered) then it might be a good idea rather than trying to learn it from YouTube. Doing it the wrong way (like the massage I had for my sore neck) or with too much pressure can do more harm than good. There were differences between the massage I had by the physio/nurse operating by herself and the technique I was taught at the Clinic in Chermside. I know the staff at Chermside undertake regular training and also check each other. Everything they do is research based and up to date.
This was very reassuring.
I don't mean to scare people but just raise awareness so that people realize the risks and what they can do to minimize them. The specialist I saw is passionate about helping people avoid getting lymphedema in the first place as well as improving the quality of life for those with existing lymphedema. My GP was not aware that this facility existed. In fact knew less than I did about lymphedema. That should not be the case!
Deanne xxx