Forum Discussion

Kathyjane's avatar
Kathyjane
Member
10 years ago

The Journey Begins

Last Monday 30th May, 2016, I attended my first Mammogram after picking up a brochure at the Dr's surgery whilst I was waiting to get my results for blood tests, just doing a checkup to see where my hormone levels were at as I have started Meno. I booked it in after I got home and went along to the bus in Camden. The Radiologist was so nice and she did a few extra scans as Im a bigger girl and she thought it was a good idea... (Im so pleased she did).

 On Monday 6th June, I got a call from the Liverpool Breast Screen Clinic to come back in for a follow up. The Breast Screen Nurse was amazing (Sam). She said that something had shown up and they wanted to do a followup Mammogram and ultrasound. Of course this then put the stress levels up.

 On Tuesday I went into the Clinic and was pretty much seen straight away... they made me feel less stressed. I first met the other Breast Screen Nurse (Debbie).  She explained what was going to happen. Mammogram, Ultrasound and then a Biopsy if needed. I had it done and there "IT" was, 2 spots side by side in my Left breast, I then had the Ultrasound. The Radiologist was also excellent, she made me feel comfortable however nothing was about to stop the tears from flowing as she explained what she was seeing. She explained the size, shape and asked if I had seen dimpling .. (nothing). I check my breast regularly but found nothing.

 I then saw the Dr and he was just amazing... I said give it to me straight.. he did... He examined my breasts and then the question ... did you feel anything.. his reply.. NO.. so the Mammogram was it.

 I then went for a break for an hour and came back to have the Biopsy... the Dr was great as well as Sam. They warned me that I could end up with a  Haematoma and I did.. the 3rd sample hurt but now my poor boob is bruised and red and blue... but it is nothing compared to what it could of been. 

 I am now waiting for the results to hopefully come back on Tuesday and then the decisions will happen.

 Watch this space!

 

Latest News from 14/6/2016

Today I had my follow up appointment at Liverpool.. what an awesome bunch of girls and Dr's. 

Well, It is Invasive Ductal Carcinoma.  Stage 2A... no lymph node involvement.  3cm (not as big as they thought) Stellate carcinoma's x 2. Very prominent on the scans... So tomorrow I need to see my GP for a referral to a surgeon and see where I go from here.  I have decided tho to have the breast removed and if I can find a surgeon to remove the Right one I am going to do the whole thing with a reconstruction. There is no stuffing around.. i do not want to be going through this again in 5 yrs and wondering if and when it is going to come back... and it is no good saying .. oh it might not. well it will and it does. Im being realistic and with the way my life is (which I enjoy)  I dont want to be having these feelings again, ever. My decision, My body. 

57 Replies

  • thanks so much for all you input... Everyday when Im working and also with my Student Nurses I can tell them what I would tell my patients I look after and now it is me... what do I tell me... Im numb and my brain just cant comprehend this... 

    I have never had the attitude .. It wont happen to me .. cos if it is going to happen it will.. 

    Im strong I will cope... 

     

     

  • Hi Kathy,

    Am thinking of you...a similar thing happened to me earlier this year...a call back from Breastscreen...no lumps or bumps obvious to feel or on the ultrasound but calcifications evident on the mammogram.

    So glad we got mine early - looking forward to hearing how you go 

    Nikki x

  • Waiting is the absolute pits but the Breast Screen guys are great and at least you now get to find out quickly where you are at.

    With me they knew even before the biopsy was done it was malignant so I was informed of it straight away as mamogram was very clear to them. I only waited to find out the details of the type etc post biopsy...

    Hoping for you it all comes back clear so keep us posted

    Wishing you the best

    Jel.

  • Hello Kathy,

    Welcome but I'm sorry you have had to join the ranks. But having said that, it is wonderful that it has been found and you can get it sorted. In my experience, any health professionals I have dealt with have been absolutely fantastic. I went through the public system and honestly, I could not fault the care I was and still am being given.  The waiting for results in the first few weeks is dreadful. Once you know what you are actually dealing with, it somehow makes it easier to have a plan of attack. As Ann-Marie has said, one day at a time and if possible take someone with you to appointments. Write down all of your questions as it is so easy to become overwhelmed and forget what you want to ask. Just be prepared that you won't have all of the answers on Tuesday.  Only when you have received your pathology from surgery will you know exactly what you are dealing with. Take care. Karen xox

  • Hi kathy..... The waiting is the worst part I think.... But you have come to the right place...plenty of support....and a place to let off steam without being judged.....I am from Moorebank...have finished my chemo last Tuesday at Liverpool cancer therapy centre.... If you need to touch base with a local I'm here......wishing you all the best...

    tracy

    xx

  • The  waiting is awful. Mine wasn't picked up on a mammogram unfortunately, I found a lump 5 weeks later. This meant I didn't have the fantastic support and experience of the breast screen staff with my ultrasound and biopsy. In fact the radiologist said well we can't  say it is cancer we need to biopsy but I already knew from the looks between the person doing the Ultrasound and the radiology Dr that it was cancer. The original scan report also said it was consistant with this...but I still had to wait 12 days...over Xmas for the result. It was awful...and wasn't  helped that my darling sister in law in this time passed away from endometrial cancer and I was supporting her beloved family...and felt I could tell know one but my husband and his family in QLD. It was actually a relief to get the results as then referrals could be made and the ball got rolling to cut the damn thing out. I went through the RAH public system..my choice...as I wanted a team approach and knew that  these units are often pioneers in new breast cancer treatments. I had to travel 500km for treatment and they were wonderful as they organised  all my scans in one week. I had one more pre appointment and then it was my surgery with reconstruction done 21 days after first consult. I haven't  needed radiotherapy as sentinal nodes are clear and body scans clear but my cancer is stage 1 ...1.9cm total max measurement, Es+ Her2+ grade 3. I therfore am having ACT-H...which is 3 chemos over 5 months and  a targeted therapy for 12 months and will be on an aramotase inhibitor also as through menopause after chemo finished. It sounds awful but each case is unique and the decisions are based on all the info. Aussie survival rates are fabulous and we really are very lucky that decisions here are not made on what the insurance company decides is the cheapest option. May you have your results soon and cobtinue to get great support. Kath x

  • Hello Kathy, I think this part of waiting for results is the worst thing.  You will receive so much help and support from this web site and I'm sure you will read so often 'take one step at a time' and ask lots of questions when seeing Drs etc. and if possible take someone with you to the appointments. I'm sure the lovely people on this BC site will have lots more excellent information.  

    Thinking about you and please keep us posted.

    Anne-Marie ??