Forum Discussion

Sue_Jones's avatar
Sue_Jones
Member
10 years ago

That dreaded free 50 year old breast screen has potentially just saved my life!

I have recently turned 50 and retired from the teaching profession in preparation for my husband and I’s move overseas to Abu Dhabi for two years with his work. Well that letter came in the mail from Breast Screen WA, free mammogram, so I made the appointment for August 26. On the day I was feeling very anxious, people had said that it hurts, I told them how I was feeling and they reassured me that it is all going to be fine and that they would explain everything along the way. So I got through that unscaved and deciding that having bigger boobs must help, it was uncomfortable but not that bad. Four weeks later the letter arrived in the mail, before opening it I said ‘YAY!’, because they said to me at the clinic that if further treatment was required that I would get a phone call. For some reason I still opened it, these words just popped off the page, ‘further assessment needed’, I lost it and rang my hubby Tim straight away. He reassured me that it was going to be all fine and to just make the appointment, we want to get this all sorted before we leave.

My appointment was set for September 29 at 8.45 am at the Fiona Stanley Assessment Clinic. I caught the train up by myself thinking that it was going to be nothing. I arrived early and grabbed a cuppa to calm the nerves. Upon entry into the clinic I could already tell that the staff were going to be very pleasant and caring, they remember your face with your name straight away. I saw a nurse first who gave me the rundown and I was then given the beautiful purple and white patterned gown. I went through to have my second lot of mammograms and shortly after the ultrasound. Whilst undergoing the ultrasound I secretly noticed that the radiologist was spending a lot of time scanning one area of my right boob. I questioned him and he said that he was a little concerned. My heart skipped several beats and I got quite teary. Upon leaving the room and returning to the waiting area another lady asked me, ‘did you bring the pizzas?’ I took one look at her and burst into tears for I knew at this point in time that something was not right. She then asked, ‘are you ok?” I shook my head to say no, she was so apologetic and offered to get me a cuppa. I texted my husband to say that it was all going pear shaped, thankfully he dropped everything at work and rushed up to be by my side. About half an hour later I had a chat and physical examination with the physician Dr Judy Galloway, she is amazing I must say, who explained the situation, examined my boobs and tried to reassure me that it was all going to be ok. Tim arrived and shortly after we went through to have the core biopsies done in the right boob, the left boob would be done the following week. The same radiologist did the biopsies which was great and said that yes he was concerned about one area of my boob. Thank goodness for the local anaesthetics because they would have probably been pulling me down from the ceiling, Tim said the punches had to go in quite deep, five all up – three in one area and two in the other. It now almost confirmed for me in my heart that it was not looking good. Tim told me to be positive, but I just knew. A good glass of white was in stall for me that night.

We arrived back at the Breast Assessment Clinic at 3 pm the next day, September 30, where my BFF had also joined us. Tim and I were called through basically straight away; no time to ponder over the thoughts that would have gone around in my head if we had to wait. After the initial greetings, there was no time wasted in getting to the reason for us being there. My heart was pounding, my stomach was churning around like anything and my hand was sweating something chronic in Tim’s hand. Dr Galloway said that the area on the side of my boob was benign, relief, but the area of concern she said, ‘well there is no easy way of giving this news to you; but, yes you have Breast Cancer’. I just lost it and started balling my eyes out. ‘She went on to say, after I blew my nose several times and wiped away the tears, ‘you have a Stage 2, 22 mm Invasive Lobular Carcinoma and there are no early signs of the cancer spreading to the Lymph Nodes. Your ER’s and PR’s are positive which means that you will be going on the Hormonal Treatment Therapy program. Please do not panic, this is fully treatable and can be cured, it is lucky that we picked it up when we did.’ I was now a blubbering mess so Tim had to pick up all the pieces and ask the relevant questions. Together we chose to go with a female surgeon in Dr Wen Chan Yeow and the appointment to see her was made immediately for the next Thursday. After our thankyous and goodbyes we returned to the waiting area and I just collapsed into my BFF’s arms, I didn’t need to say anything, she just knew! It took me quite a while and a good strong cuppa to calm down. By this stage my BFF’s hubby had arrived and gave me the biggest teddy bear hug that he could possibly give me, just what I needed. We chatted for a while before going our separate ways. Well, the expensive wine came out that night, and for the next few too! I just wanted to get away and forget all about this crappy thing called BC. Tim had to break the news to my family, they were already prewarned, and it was decided that we would go down south for a few days, staying with my loving brother and family. They were amazing and spoilt me rotten. My sister in-law, niece and nephew organised to get all my favourite food and they took me to my favourite wineries. We had many D and M’s (a nurse needless to say) and they all helped get into a positive frame of mind to beat this crap. This is definitely what the doctor ordered and I needed. It was just a pity that the Eagles couldn’t win the Grand Final because that would have helped even more. The biopsies were done on the left boob the next week and thankfully they all came back clear. The one thing that I can take away from all of this crap is this message:
“When a free opportunity comes your way and you are invited to do something or to take a screening test, just do it! Do not hesitate or put it off as it could ultimately save your life! Early detection is definitely the key to curing the nasties of modern medicine!”

And so my Journey begins!

10 Replies

  • I am so sorry to hear your news.  That is so quick, so I can imagine the shock that you must have been in.  So glad that you acted on it quickly.  Hope it all goes well for you  Hugs to you too nd enjoy your weekend.

  • Hi sue how lucky are you !!! I also went for my 52 year breast screening . Felt very anxious as I have never been to this free one .   Was told if there was any thing of concern they would let me know within days or a letter of results will be forwarded within 2 to 3 weeks .  Just days before my letter arrived I went shopping wearing a different bra and mentioned to my husband that the wire is digging into me I must have put on boob weight.within the next day or so it was still hurting but could also feel a lump. So I went to family gp who also got the results by then which stated all clear as far as the naked I could see.  But doctor was worried sent me to women's diagnostic centre and that is where they picked it up. They found a small lesion which in days went to 4cm and has spread to lymph nodes. They also found that I am positive her2 so i have been advised to do Neo adjuvant therapy.  Had first session on Wednesday.  Positive positive positive thoughts. We are all in gods care.  Hugs to you 

  • Have added another post Summer, one more to go and then I will be up to date. ??

  • Hi Sue

    I am 'waiting with bated breath' for the next chapter of your book !

    It is good to read that your op went well.

    Abu Dhabi here you go ......

    Have a happy weekend.

    Summer :-)

     

  • Hi Trace!

    Thank you for your kind words.  Yes the support from my family, friends and old work colleagues has been amazing and reading others blogs on this website has also being extremely helpful.  This time last week I had my op and am shortly going to update my blog so that everyone can continue to read my journey.  BTW the op wend well.

    Have a great weekend.

  • Hi Brenda!

    Thank you for your message, yes I am hoping that I only have to go on the short journey not the long one.  Will find out next week as I have now had my op, which went well, and I plan to update my blog shortly.  I have got the My Journey Kit which has been wonderful thank you.  Didnt know about the Strepils but the little bottle of Detol sanitiser was used all the time.

    Take care.

    Sue

  • Anonymous's avatar
    Anonymous
    Not applicable

    Hi Sue and welcome to bcna site. That post was so well written, and took me back to my diagnosis. I hope that your upcoming surgery and follow up treatments go smoothly for you. You have wonderful support around you that will be so good during your journey. Please continue to check in with us all during your treatment, there are so many people on this site wh will support you, and will provide you with good advice. Sending you a big cuddle, Trace ??????

  • So sorry to hear yet another one has joined the bc ranks.

    At least there is a little good news in that its only one breast and so far no node involvement.

    Same verdict as me. Keep an eye our for your my journey kit as hubby and I had no idea what bc involved and waiting weeks for the surgery our heads were doing all sorts of things. Knowledge is good especially for husbands who can do nothing to help you but just be there.

    I dropped 3kg straight off with the news but my lovely breast care nurse said that is a normal thing.

    I think my long awaited menopause has decided to start with the news as well so I am doing the whole hot flush, cold put on a coat, hot flush then cold put on a coat thing. I've sort of gotten used to it. Its amazing how well we can adapt.

    Little tip, before going in to shopping centres or doctors offices pop a strepsils in your mouth. The antibacterial goes for hours to ward off nasties. Our family used to do the same thing when we went to the annual city show and we never got sick except for the year we forgot the Strepsils oops!

     

  • Hi Summer! 

    Thank you for your comments and words of encouragement.  I have just read your journey, which I am sorry to hear, and I hope you are enjoying and making the most of every day now. I will be adding to my story shortly, didn't have a good night, twinges in the boob most of the night.

    Hugs all round,

    Sue

  • Hi Sue

    Don't you just love Breastscreen visits (not !).  I was diagnosed at my 8th mammogram and like you, the radiologist seemed to take quite some time on one breast.  Within 2 weeks I was there for the biopsy and then a week later for the news.  All the other biopsy ladies were taken to one end of the building and I (along with hubby) was put into an office at the other end - this did not seem good at all !  Sure enough, after waiting more then an hour for everyone else to be seen I was told that I had to have a mastectomy.

    There is life after all - and you have a great new life O/S waiting for you.

    Good luck and do keep in touch to tell us how you are travelling.

    Big hugs

    Summer  :-)