Forum Discussion

Anonymous's avatar
Anonymous
Not applicable
14 years ago

Thank you...the jury is in!

Hello ladies, thank you so much for taking the time to post and give me your experiences and thoughts around Port vs PICC.

It seems that the Port wins unanimously!

I feel so much better having received your comments, and I now feel confident that the Port is the way to go for me. A nurse at the hospital was quite keen on the PICC line, probably because it is less complex to 'install' etc, however if I'm going to be receiving regular treatment long term, then I need to feel as comfortable as I can with my veins being accessed.

Nowadays, because of my collapsing veins, I'm a big chicken with needles. When I enquired about getting a line put in, a nurse at the hospital told me that a fairly large, thick (scary-looking) needle is used to access the chest Port each time and that really frightened me! I had visions of even more pain! She also showed me how the Port would look under the skin when inserted, and it was quite unsightly....it was very noticeable and reminded me of a full-size bottle-top (close to an inch) sticking out just under the  surface of the skin. I'm not a vain person at all, but this was very off-putting...it looked so strange. Those sorts of comments made me lean towards the PICC line initially.

No-one on this site has mentioned an unusually big, scary, fat needle which is great and some have mentioned numbing patches which sound like a fantastic idea. No-one has talked about the unsightly look of the Port either....perhaps this particular nurse I saw was just a fan of the PICC, and was more keen to promote that?

Anyway, I am now happy to go ahead with the Port to make this crappy situation just a little less crappy! :-)

It appears that the Port can be inserted in the chest or arm (?), but I think the chest would be better for me...less chance of knocking it etc.

I go tomorrow for me pre-anaesthetic assessment, and then the Port is inserted on Thursday,17th November, under twilight anaesthetic ( I assume this means I am not fully asleep?). This will all be done in time for my next chemo treatment on 24th November which is a relief!

My understaning is that I don't have to do any maintenance on the Port myself...the hospital can do that, which i think is also a relief at this stressful time.

So thank you once again ladies for taking the time to respond...you've all provided me with invaluable information that has helped me to make a confident decision and alleviated the anxiety I've been having around this.

So now to step 2...having the Port inserted to make life just that little bit easier...

Big hugs, Celeste xx??

6 Replies

  • Anonymous's avatar
    Anonymous
    Not applicable

    Thank you Hilary, yes I've heard about the Emla patches and they sound like a God-send! I will definately be asking for some! Take care, Celeste xx

     

  •  Well done on your decision a port is the only way to go with long term treatment. Ask your oncology nurse for an Emla patch, you pop it on over the area where the port is about an hour prior to your treatment , it is a local anaesthetic so you will feel  NO PAIN !!! Good luck will be thinking good thoughts for you . Hilary

  • Anonymous's avatar
    Anonymous
    Not applicable

    Thanks for your post. Yes it seems that everyone is in agreement....the port is the way to go! I will have to think of a very special name for my port too! Lemonade iceblocks sound nice...my mouth is so dry and tastes revolting so lemonade icy poles might be a refreshing change!

    I was sorry to hear that you were recently diagnosed with thyroid cancer...it sounds like you've been through a pretty rough journey Chrissy. I am hoping and praying that your small bowel results are ok too. It sounds like you have some wonderful work mates rallying behind you which is lovely.

    Take care Chrissy and all the best. Will be thinking of you.

    Celeste xx

     

  • Anonymous's avatar
    Anonymous
    Not applicable

    Hi Jo, thanks for your post. So you agree there's a 'smoking nurse' lurking about my Chemo Day Centre?..well I'm glad to hear that (in a strange sort of a way!) cos I wasn't looking forward to the big, fat and long needle she told me about!

    The last fews days have been pretty crappy side effect wise....the runs, headaches, runny nose, aches and pains, sleeplessness, mild nausea, sore scalp and of course the taste of having eaten half a dozen aluminium cans!!.. I've just been taking it easy really and trying to decide when to shave my head....probably next week some time.

    Yes, am feeling more positive every day...or should I say more accepting of the cards I've been dealt. You're right, it's gonna be crappy but its wonderful to know you are all right there with me if I need you.

    Take care, Celeste xx

  • Anonymous's avatar
    Anonymous
    Not applicable

    Hi Cheryl, thanks for your post....you've made it all sound so easy and so right for me. Now im just hoping the procedure will go smoothly on Thursday.

    I had a bit of a chuckle about the 'smoking nurse'....in fact I probably wont be able to look at her again with a straight face! I'm not sure what the 'bent' (pardon the pun)  was towards the PICC, but I'm glad I came on this site and investigated it further.

    Yes, I will be a star patient with the Infusaport in...the nurses wont cringe any more when they see me walk through the door!

    Take care,

    Celeste xx

  • By the sound of things  that nurse was smoking something as Cheryl said and probably on a hospital commission too.

    Its so good to see you moving on with everything in a much more positive way. You are a champ Celeste,  Its going to be a tough journey, crappy to no end , but we are right behind you.

    How are the side effects so far? It will all be over before you know it. Keep the spirits going mate you will be ok

    Cheers Jo xx