Hi Karen
So confusing! I'm due to have my Mirena out this afternoon and now I'm not so sure. My BC was ER+++ and PR++. Even as I type that I'm not 100% sure what it means. My Oncologist said it was my decision about having the Mirena removed, but she recommended it. I can't see the point in having these specialists if you don't follow their advice but I do feel confused. I trust my GP and the surgeon he referred me to has been great and I trust her too. The oncologist comes referred by the surgeon and i met a couple of other ladies who see her and they trust her also. My endo wasn't as severe as yours but I can't bear the thought of having that daily pain back in my life. Like you I would be interested to hear fom anyone else with similar experience.
Thanks for the note and best of luck. Debbie