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Sue_Hall's avatar
Sue_Hall
Member
12 years ago

Tamoxifen causing large ovarian cyst

I am wishing to hear other women's experiences with making a decision to have my ovaries and/or uterus removed as a result of re-occurring ovarian cysts whilst being on Tamoxifen.  I am into my 5th year of taking this drug.  It has only been in the last year that ovarian cysts appear and then disappear as well as thickening of my uterus and fibroids growing on it.  I have annual pelvic ultrasounds and at my last one on 25 June 2013 showed a large 5cm x 4cm cyst was on my left ovary.  I am now in a dilemma because the gyno at my public hospital wishes to remove both ovaries and uterus, however, my oncologist is saying no.  My oncologist has told me that I am going to continue taking Tamoxifen for a further five years, which will make it 10 years all up.  I am 46 years of age.  I am having another pelvic ultrasound tomorrow to see whether or not it's grown or shrunk.  After that I then have to make a decision.  The gyno is writing to my oncologist (2000 kilometres away) to explain in writing the reasons why I should not have a hysterectomy.  Anyone else's experiences would be handy to read.

17 Replies

  • I had been diagonosed with Breast Cancer in July 2013,, I've been on Tamoxifen ever since,, and today I after a ultrasound that I have an Ovarian Cyst,,,  is this the beginning,,, I've only been on this 6 months???? I'm 48yrs 

     

  • I would have gladly had my ovaries out if had had. Brca. Gene. Since Did not have not had any gynaecological removal surgery. Carol
  • I would have gladly had my ovaries out if had had. Brca. Gene. Since Did not have not had any gynaecological removal surgery. Carol
  • Thanks so much Michelle.  Will take one step at a time and go from there.

    Sue :)

  • Thanks for your reply Viv, its great to read other people's journeys, everyone is different.  All the best for your op.

    Sue :)

  • Hi Sue,

    Lumpectomy 30/04/13 with 6 weeks radiation, my oncologist has put me on Tamoxifen.  Has told me I will have the same benefit from having ovaries remeoved as chemo, so at 49 I was more than happy to say goodbye to those ovaries that feed my type of cancer.  My GP suggested I have uterus out as well, ran this by the onco who agreed so off to see Gyno.  He also agreed, so I am booked in for the hamburger with the works on 9th October.  My choice of date, 1 week after my daughter does her deb.

    I am pleased to have everything out, don't need them, they have served me well.  Depending on bone scan being ok I will then go onto Arimidex.

    If you need to know anything else, just let me know.

    Happy to share any info with you.

    All the best

    Viv

  • Hi Sue,

    Lumpectomy 30/04/13 with 6 weeks radiation, my oncologist has put me on Tamoxifen.  Has told me I will have the same benefit from having ovaries remeoved as chemo, so at 49 I was more than happy to say goodbye to those ovaries that feed my type of cancer.  My GP suggested I have uterus out as well, ran this by the onco who agreed so off to see Gyno.  He also agreed, so I am booked in for the hamburger with the works on 9th October.  My choice of date, 1 week after my daughter does her deb.

    I am pleased to have everything out, don't need them, they have served me well.  Depending on bone scan being ok I will then go onto Arimidex.

    If you need to know anything else, just let me know.

    Happy to share any info with you.

    All the best

    Viv