Forum Discussion
kezmusc
8 years agoMember
@squirrel . Tamoxifen just sux.
If you look at some of my posts you will see me whinging and whining about this drug. I feel for you and I know how difficult it can be. My onc says I can change drugs but feels if I am getting this much trouble with the Tamox the others could be worse. At least, as you know the side effects of Tamoxifen seem to reverse quickly once you stop taking it.
I don't think anyone's body likes there hormones artificially manipulated. For those of us who are apparently on the "rare and extreme" side of things most of it is just discounted as bad luck. Personally, I don't think any of my doctors believe the effect it can have on your brain let alone the physical side effects.
You are right @Zoffiel. The information we give goes no where. Unless someone here (It's being done overseas) does a "Clinical trial" on it, it won't get mentioned as a possible side effect.
Rochester University is doing a study on the toxic effects of HT on brain cells and the central nervous system. They are working (rat trial only so far) on a drug to take with the drug, wow, to stop the effects while maintaining its efficiency to do its job on the prevention of recurrence. Unfortunately I am not a rat!
My biggest fear is somewhere down the line they find this attributes to Alzheimers or something.
About to start my three weeks off and then give it another crack. Fourth time lucky huh?
xoxoxo
If you look at some of my posts you will see me whinging and whining about this drug. I feel for you and I know how difficult it can be. My onc says I can change drugs but feels if I am getting this much trouble with the Tamox the others could be worse. At least, as you know the side effects of Tamoxifen seem to reverse quickly once you stop taking it.
I don't think anyone's body likes there hormones artificially manipulated. For those of us who are apparently on the "rare and extreme" side of things most of it is just discounted as bad luck. Personally, I don't think any of my doctors believe the effect it can have on your brain let alone the physical side effects.
You are right @Zoffiel. The information we give goes no where. Unless someone here (It's being done overseas) does a "Clinical trial" on it, it won't get mentioned as a possible side effect.
Rochester University is doing a study on the toxic effects of HT on brain cells and the central nervous system. They are working (rat trial only so far) on a drug to take with the drug, wow, to stop the effects while maintaining its efficiency to do its job on the prevention of recurrence. Unfortunately I am not a rat!
My biggest fear is somewhere down the line they find this attributes to Alzheimers or something.
About to start my three weeks off and then give it another crack. Fourth time lucky huh?
xoxoxo