Forum Discussion

donnafischer's avatar
10 years ago

Swelling in neck *** Updated added***

Hi Guys, 

Has anyone who has had the sentinel node biopsy, had swelling at the gland close to the collar bone in the neck? I'm four weeks post op and the gland is swollen but it seems to be quite puffy and fluidy. I spoke to my breast care nurse late Friday afternoon and as she knows I have an appointment with my surgeon on monday about my upcoming surgery on Thursday she said to mention it to him/ She also felt it could have been related to a cold I had two weeks ago. Just a little bit concerned.

 

UPDATE  - I got to speak to my surgeon today, who has been on leave. I went in quietly confident we'd be just having a bit more of the tumour area removed and the lymph glands removed. However, we finally got to have that talk we wanted with my surgeon. We finally had explained what it is we are actually dealing with, and there's only one way to deal with this bastard, and that's chop them off. And FINALLY, it was MY decision. I took control. So, I'll back pedal a bit and explain how we came to the decision to say ta ta to my ta ta's.   It appears, that I am just THAT freakin special to have a rare form of lubular (?) breast cancer. This cancer can and will turn up in other areas of the breast. So we could take some more from where it was, and nek minut, it will be somewhere else. Its also VERY aggressive, which is why its already made its way to the lymph glands. So the smartest and safest thing to do is to remove the breast.  I'm a worry wart and while we were discussing the already diseased breast, my over worked, over tired and over thinking brain is yelling "What about the other breast" So the ever patient doctor went through all the risks, and I made the decision then and there to ask for a double mastectomy.  I know people have said to me from word go, "its only just boobs" and I cant explain properly enough, my initial reaction to protect my girls and try and go a more conservative path, but it hasn't been an easy choice till today, and even then, I lost it again in that consulting room. And I probably would have said the same thing to someone facing these decisions. I am eating those hypothetical words now. Its psychologically a very very difficult process to get to the point to remove my breasts. And to watch my kids reactions, and hear the upset and concern in my family's voices, is tearing me apart. But we will all get there .My family and my friends are a very formidable force en mass.  I have one more test to do first thing in the morning. I have had a gland/node swell up over the weekend in my neck. So as a precaution its being biopsied by fine needle tomorrow morning. Wednesday I will go back to work for my last day and surgery is sometime on Thursday. I've been advised not to go back to work till all treatment is finished, so I will be pleased to get a chance to say goodbye to a few patients on Wednesday till later in the year.  So where is my silver lining in all this. Well apart from the obvious of removing risks, I wont have to wear a bra for YEARS!!!! (come on ladies, you know how exciting this is) And you D cup and bigger ladies, you all know HOW exciting it will be to wear tops and dresses that don't need those god awful clear plastic bra straps. I am SOOO hitting the op shops as soon as I'm well.

5 Replies

  • It is one of the main lymph areas in your body. If your surgeon doesn't have any concerns over it, try this lymph massage and try to move the swelling to your other lymph areas. Poor things have probably been a bit taxed in that spot and needs some help to disperse it. https://www.youtube.com/watch?v=Up_sIKnZ-_g

     

  • It sure is awful. Maybe one day we'll be able to be vigilant without so much stress, but just over nine months in it still feels a long way away. I'll be interested to know what the surgeon says. 

  • Thanks Lyn, yes its tender. I am seeing the surgeon tomorrow morning so hopefully will have it sorted then. Isnt it awful that everytime we feel something out of the unusual, it causes stress.

  • Hi Donna, is the gland tender? The best thing is to speak to the surgeon. I feel like I'm feeling different lumps & bumps all the time & get worried every time. I've been told these concerns ease over time, but never fail to mention a new symptom to a member of your treatment team. 

    Take care, Lyn