Forum Discussion
kezmusc
7 years agoMember
I was nearly finished treatment when I first posted on here but I had been reading so much of the forum along the way.
There were posts fom a few people (some still posting some not) I had read a couple of days before chemo started that really helped me to stop thinking I was going to spend the next six months between the couch and the loo. @Afraser, yours was one of the first I read. I thought, wow, look at this lady, she has done it and kept working and doing her thing along the way. I can do the same. Those few posts gave me strength at just the right time and for that I say thank you. xoxx
I had a bit of an argument with my onc one day after being dismissed and fairly much told him they needed to speak to real people going through it. My appointments are very short these days LOL.
The only doctor that was receptive to the forum was my Radonc. She was very approachable, open minded, I valued her opinion and I really didn't care what anyone else thought apart from her by that stage.
She is from California and said that in the States a good number of doctors are now starting to crowd source on forums to get the patient perspective of side effects and emotional fallout that are common but not on the list so to speak. Sounded like a good idea to me. Easy to do and could give insight into where more study and support is needed.