Support needed from health professionals during treatment and beyond
This discussion was created from comments split from: Early Days on Letrozole.
Forum Discussion
@Romla That's the very thing I was driving at. It would be so helpful if there was a mandated check-up three months later. Eg. "You've 'settled-in' to your hormone therapy, and things have gone back to 'normal', but we know you've been changed by this experience, so is there anything we can help you with?" And then say, run through a check list.
This was all just a thought and in no way meant to suggest a priority. I have watched my sister die from breast cancer. Not from a distance, but up close. I cooked the last meals she ate, I held her while the emotional pain at her imminent death wracked her entire being, slept in her hospital room, read to her at 3am when she was struggling to sleep, held my parents, and her children, in their despair at watching their child and mother die, and much much more that is not appropriate to detail here. I wish in no way to trivialise anyone's suffering or need. If I was queen of the world, Stage 4 BC would get far more.
However as to myself, I can only speak to my own experience, and as a survivor who is finding it difficult, I was just musing at how I'd improve the system for the many who do survive. Health care is complex, and in a country as large as this, often difficult to administer; my sister, in metropolitan Melbourne, received incredible support from many services. The government could pour all the money available into health care and there would still be gaps.
Peace to all. K xox
This was all just a thought and in no way meant to suggest a priority. I have watched my sister die from breast cancer. Not from a distance, but up close. I cooked the last meals she ate, I held her while the emotional pain at her imminent death wracked her entire being, slept in her hospital room, read to her at 3am when she was struggling to sleep, held my parents, and her children, in their despair at watching their child and mother die, and much much more that is not appropriate to detail here. I wish in no way to trivialise anyone's suffering or need. If I was queen of the world, Stage 4 BC would get far more.
However as to myself, I can only speak to my own experience, and as a survivor who is finding it difficult, I was just musing at how I'd improve the system for the many who do survive. Health care is complex, and in a country as large as this, often difficult to administer; my sister, in metropolitan Melbourne, received incredible support from many services. The government could pour all the money available into health care and there would still be gaps.
Peace to all. K xox