Support needed from health professionals during treatment and beyond
This discussion was created from comments split from: Early Days on Letrozole.
Forum Discussion
Well said @kmakm,
As far as the BCN's go. Mine were great. In saying that though there are two of them so when one is not available the other one is. It's a bit of a hit and miss, depending on who you get and how big of an area they need to cover, how overworked or jaded they are. Unfair, yep. The only thing that will get more nurses is obviously more money and the only way they know if their nurse is not up to par is if someone says something.
I have bemoaned the lack of belief about the cognitive thing before. My onc said my case was "extreme". Bollocks. 2 minutes on google and you can see it's not.
No one ever said anything about it to me or how badly it can affect your vision.
I walked out with a list for two drugs Tamoxifen and Zoladex & exemestane. The side effect lists for both were almost identical and contained 5 or 6 common side effects and had to make the choice. These lists almost trivialise the impact it can have. You know, hot flushes, dress in layers etc etc. No where was it written they can make you throw up, dizzy, nauseas and loose your balance.
I had to do my own research on why this was happening, then got fobbed off at both the GP and the onc and was just left to my own devices as how to manage it to suit me.
I guess to be fair, there really is only the pain side of things they can give you a script for. No doctor can fix your libido or the fog that runs in your head, can't do anything to help the hot flushes either. They can give you some pills that might help the pain and antidepressants and that's about it. So I guess there are only two choices that they can give you. Take the pills, don't take the pills.
@"Patti J" , It must seem quite trivial the things we complain about from your side. I can understand that and can only imagine how that must make you feel at times. Enjoy your yoga class lovely.
Hugs
xoxoxxxx
As far as the BCN's go. Mine were great. In saying that though there are two of them so when one is not available the other one is. It's a bit of a hit and miss, depending on who you get and how big of an area they need to cover, how overworked or jaded they are. Unfair, yep. The only thing that will get more nurses is obviously more money and the only way they know if their nurse is not up to par is if someone says something.
I have bemoaned the lack of belief about the cognitive thing before. My onc said my case was "extreme". Bollocks. 2 minutes on google and you can see it's not.
No one ever said anything about it to me or how badly it can affect your vision.
I walked out with a list for two drugs Tamoxifen and Zoladex & exemestane. The side effect lists for both were almost identical and contained 5 or 6 common side effects and had to make the choice. These lists almost trivialise the impact it can have. You know, hot flushes, dress in layers etc etc. No where was it written they can make you throw up, dizzy, nauseas and loose your balance.
I had to do my own research on why this was happening, then got fobbed off at both the GP and the onc and was just left to my own devices as how to manage it to suit me.
I guess to be fair, there really is only the pain side of things they can give you a script for. No doctor can fix your libido or the fog that runs in your head, can't do anything to help the hot flushes either. They can give you some pills that might help the pain and antidepressants and that's about it. So I guess there are only two choices that they can give you. Take the pills, don't take the pills.
@"Patti J" , It must seem quite trivial the things we complain about from your side. I can understand that and can only imagine how that must make you feel at times. Enjoy your yoga class lovely.
Hugs
xoxoxxxx