Support needed from health professionals during treatment and beyond
This discussion was created from comments split from: Early Days on Letrozole.
Forum Discussion
@Sister. I am still very disappointed about the breast care nurse from the McGrath Foundation that I had to deal with. She fobbed me off because, in her opinion, I lived too far away.
I am also disappointed with the Encore program which I started attending, which seemed to be designed specifically for unfit people with early stage breast cancer and was run by someone acting like a child!
As someone with mets, there is even less support. Many people don't even know what metastatic breast cancer is. And because I don't look sick, even less is done for me.
I read the forum posts and wonder why people complain so much. Letrozole is only one drug. What about all of the other ones that those of us with mets have to take? These get changed regularly because they stop working or the side effects are not good.
Don't get me started on all of the people who take sleeping pills and strong pain killers! Why? That is why you can't sleep!
Then there are the never ending blood tests in the one arm that has been used for I.V. chemo. and the monthly injections in the tummy.
Or the CT scans and MRIs and bone scans that need to be done.
This is all after early stage breast cancer and the numerous operations, procedures and medications involved with that.
Now, I am on a drug which the oncologist is not sure will work because I have invasive pleomorphic lobular carcinoma!
Rant over! I am off to yoga!☹
I am also disappointed with the Encore program which I started attending, which seemed to be designed specifically for unfit people with early stage breast cancer and was run by someone acting like a child!
As someone with mets, there is even less support. Many people don't even know what metastatic breast cancer is. And because I don't look sick, even less is done for me.
I read the forum posts and wonder why people complain so much. Letrozole is only one drug. What about all of the other ones that those of us with mets have to take? These get changed regularly because they stop working or the side effects are not good.
Don't get me started on all of the people who take sleeping pills and strong pain killers! Why? That is why you can't sleep!
Then there are the never ending blood tests in the one arm that has been used for I.V. chemo. and the monthly injections in the tummy.
Or the CT scans and MRIs and bone scans that need to be done.
This is all after early stage breast cancer and the numerous operations, procedures and medications involved with that.
Now, I am on a drug which the oncologist is not sure will work because I have invasive pleomorphic lobular carcinoma!
Rant over! I am off to yoga!☹