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Sharon01's avatar
Sharon01
Member
7 years ago

Start Chemo in one month

Received my pathology results and the cancer is in my lymph nodes. Early next week I have a CT scan and lymph node biopsies. Chemo will start 3-4 weeks after that. I am trying to deal with all this and I'm finding it hard. In 32 days I have gone from being healthy to having a double mastectomy and preparing for chemo in a few weeks. I'm al a loss of words (that doesn't happen very often) and my emotions are everywhere. 

Any advice on what to avoid during chemo, best foods and where to find wigs/scarves would be greatly appreciated.

Live Long & Prosper 
  • It is amazing how cold your head can get with little hair. I mostly just wore a cap especially when shopping in the fridge section at Coles.
  • Hi @Sharon01  It's a whirlwind at the beginning.  There are lots of posts on this forum with tips for going through chemo treatment.  I don't live near 24 hour shops so I got stuff in before I started that the ladies here suggested: 
    Hand wipes
    Sanitiser
    Disinfectant wipes (when you're a bit unsure of public facilities)
    Coloxyl with Senna
    GastroStop
    Sick Bags
    Toilet Wipes
    Biotene Mouthwash
    A really soft toothbrush (toddlers style)
    Movicol

    The only things I didn't use were the sick bags and Movicol.

    I stayed away from things that could obviously make me sick (no hugging people with colds, etc) but mostly lived as normal.

    I started with cold caps so got some baby shampoo.  The caps didn't work well for me so ended up stopping them.

    Ladies up in Qld may be able to tell you about wig hire.  I only wore a wig when I wanted to fly under the radar so would suggest that you investigate that option rather than buying one as they are quite expensive.  Hit the Op Shops for scarves.  There's some great sites for how to tie them.

    Food is pretty individual and can change during chemo.  There is a post here about what people have liked during chemo (maybe someone could post the link as I can't find it).  While it's good to stay as healthy as you can, it's sometimes more important just to be able to eat.  

    Have you been advised to get a port?

    Some people are able to work through chemo - some are not.  You won't know how you're going to tolerate it until it happens.  If you are employed and can't work, investigate your Super for Income Protection options.

    I think many of us recognise what you feel.  One minute you're feeling healthy and making plans and the next you're completely sidelined.  Knowing that the cancer was going to make you sick eventually doesn't stop the feeling that you were well until you started treatment.  You're on a rollercoaster and it is likely to play havoc with your emotions.  That's okay.  If it gets too much, please consider getting professional counselling.

    We're here when you need support or information.
  • Hi there @Sharon01..this truly is a nightmare, isn't it? The shit hits the fan and splatters everything in sight and without warning. I remember feeling stunned that my life had changed so much when I realised that the week before diagnosis, the biggest concern in my life was what to cook for dinner. Then it was what songs to play at my funeral. Then I thought f**k that, put on my combat boots and went into battle. Your feelings and emotions are quite normal under the circumstances, I mean really, your "Girls" have gone feral and are trying to kill you. The outward manifestations of your womanhood have been chopped off and you're about to have highly toxic chemicals introduced into your body. Who the hell wouldn't feel as you (and all of us in this rotten club) do?. You will probably be given a comprehensive list of information regarding the drugs you will be getting. Remember, you may get few and mild symptoms or severe and debilitating...it varies from person to person. Keep a diary and mention to your team any problems you might have. They can tweak your treatment in many ways, so don't be afraid to ask...loudly if necessary. Don't be intimidated by that list of possible side effects, they might never happen. When pregnant, a woman might have nausea or severe vomiting, varicose veins, piles, heartburn, round ligament pain, bleeding etc etc...you get my drift, but seldom will she have them all or even any. Avoid people who are obviously ill with infectious illnesses such as flu and keep hand cleanser in your pocket or bag when out and about on public transport or in shopping centres. My breast care nurse gave me the tip of keeping my hands in my pockets at times like this. Use your elbow to posh lift buttons, hold onto escalator rail, and things like that. You are more likely to pick up bugs by touching an infected surface, and then afterwards touching your nose or rubbing your eyes than from a sneeze. Some chemo drugs leave you very sun sensitive, so be aware of that. For me, food wise, I just are what appealed to me, sweet stuff was ughh and savoury things like salt and vinegar chippies were yummy. I started chemo in autumn, so knitted myself a selection of beanies, but there are other members who will be able to give you links to websites with summer headwear. I wish you the very best of luck with your treatment, and remember to keep in touch with your fellow tribe members here.