Hi Vicki
Have been reading your comments, & I can relate to them all. We are lucky that we have such wonderful support systems-I find this site to be the best of those systems. Here we can vent, share, whinge, & discover that many others feel exactly the same strange debilitating pain, mood issues, sleeplessness etc that we do, so that suddenly we don't feel so "stupid". I have been on Arimidex for 2 years now, and of all the side effects have only really learnt to manage the hot flushes and night sweats. The hand pain and stiffness in the mornings, waddling round on stiff legs after sitting or lying for more than half an hour etc, these symptoms have never improved for me. Certainly Panafon osteo helps a lot, so long as I remember to take it regularly. I tried fish oil, glucosamine, krill oil-all they did was Mack me vomit! Lol! So already with a "dicky hip", I need heavy drugs for joint/muscle pain.
I keep telling myself that the pain is far better than risking the mets in my back increasing in size or spreading. It's been static for 3 years.
Keep checking in here and sharing with us, as I will look out for your comments. It really does help to share and have a sense if belonging and "sisterhood".
Hugs to you
Love from
Kathleen x