Single mastectomy for ILC.....
This discussion was created from comments split from: Stage 3 Invasive Lobular Cancer diagnosis.
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Hi all, it's really great to be able to read your stories. I had single mastectomy 1week ago, ILC diagnosed from the multitude of tests pre-op (apparently MRI was important to show blood flow pattern, that helped confirm lobular). Path showed multiple lumps, biggest 45mm, total areas approx 10cm(!), plus 3 lymph nodes out of 9.
Had thought pre-op as oestrogen+, rads then hormone suppression was highly likely to be effective.
Now, turns out 1 sentinel node showed "pleomorphic". Also not every site oestrogen+.
Appointment with med onc tomorrow morning, but now sounds like chemo 1st. Bigger shock than needing surgery, and why am I more worried about losing my hair, than about losing a boob?!?
(And wondering if I should have queried a double mastectomy, I never even asked, as all scans etc showed right side clear.)
Had thought pre-op as oestrogen+, rads then hormone suppression was highly likely to be effective.
Now, turns out 1 sentinel node showed "pleomorphic". Also not every site oestrogen+.
Appointment with med onc tomorrow morning, but now sounds like chemo 1st. Bigger shock than needing surgery, and why am I more worried about losing my hair, than about losing a boob?!?
(And wondering if I should have queried a double mastectomy, I never even asked, as all scans etc showed right side clear.)