Secondary bone cancer
Hi all
I have recently been diagnosed with IBC only to discover the very next day it had also spread to my bones and after the bone density scan they have informed me it's very widespread. Well I jus...
Forum Discussion
Hi Chrissy, So sorry we have to meet because of IBC. Its nice to have a good team looking after you even if all else seems bad. I had a good team at Cabrini Brighton Melbourne Makes a huge difference. Hopefully someone on this list will know about portacaths. The thing with IBC is that everyone is diagnosed at stage 3 or 4 because of the speed of it. Mine went to my lungs but with the treatment I'm Now NED. Not cured but they can't detect it. I wasn't going to have any treatment after being told I can't be cured, and they can only try and control it. I eventually agreed and so glad I did. We are all different but one thing I did do was keep up my vitamins to try and repair all the damage the chemo was doing to my body. Ask your doctor first. Mine said normal vitimins ok, although I read something about B vitamins might interfere so I left those out till the chemo was over. Not sure if that was the right thing to do or not, there was not a lot of info out there. Please keep in touch with us and let us know how you are going.