When I was first diagnosed in 2005, the only information I was given was that as I had small breasts that I may as well have a maestectomy, as there wouldn't be much more than a nipple left anyway. I was given research material to read & what stood out to me was that if the cancer returned after a partial that it was very aggressive and usually fatal. In Nov 2012 I decided to look into reconstruction and Jan 18 2013 I had an expander implanted, insitu of my major pec muscle. While in hospital a Breast Cancer Nurse visited me as she was informed that I had been considering a maestectomy of my healthy breast. She proceeded to tell me that I was being a bit drastic, as I only had a low grade cancer & just cos I had it in one breast didn't mean that I would get it in the other. However when I next saw my Plastic's Doc, he said not to listen to her. That at anytime down the track I had decided to have it off, even if it was years, he would do so for me. The day before I was to have the expander changed over to a silicone implant, I had a mammogram. I asked my Plastic's Doc if the results were ok & while he checked I was wheeled off to anaesthetics. My op was cancelled as calcification was picked up in my results. The next day after more mammograms & ultra sound, they were 99% sure it was benign, as the calcification was the same as in my 2009 scan.....which was not documented. It had disappeared in the following annual mammograms until now. They thought this was because it was right against my chest wall & wasn't picked up. The radiographer shared her experience with me & I learned about a skin sparring maestectomy, which she showed me hers. So that's what I had done & had both silicone implants done at the same time. The Breast Cancer Surgeon came to give me the results.....it wasn't cancer, just a shadow.
Now I am NOT telling people what they should do, just sharing my experience. For me in hind sight.....I wish I had had a skin sparring double mastectomy & gone through the expansion of both breasts prior to having the silicone implants in 2006. It would have stopped the annual worry of "what if" with each mammogram & as good as the radiographers and Docs are...they do make
mistakes. I have my new nipples & in Nov will have another op to change over my left implant to a smaller one, as the pec muscle pocket that it sits in needs to be made smaller so that the two are more symmetrical. Plus I will be tattooed at the same time. Then all should be done! It has been quite a journey, but I am glad that I have had it done. I hope this helps anyone out there who is searching for answers.
My cross over journey is the side effects of takingTamoxifen for 6 years. In the past couple of years I have had 2 curett's (hope the spelling is correct)- during one had pollop's of up to 3cm burnt off (benign)& as I am still having the odd bleed I am having another pelvic ultrasound in a couple weeks time.
Pap smear was clear, but just finished a course of
antibiotics for an infection that was present. I have asked about a hysterectomy, but was told I was being a bit
drastic. I have heard about a procedure where the uterine wall is burnt out, perhaps this could be an option?? If anyone out there has any info that would help, I'd love to hear it. Thanks in advance.