Forum Discussion
Shakalker
7 years agoMember
Scan or not to Scan - Post treatment
I have now completed treatment and I’m on Letrazole.
I had IDC grade 3 ER + clear margins, 2x lymph nodes with adenocarcinoma and High grade DCIS - margins involved.
I had 3x FEC and 1 out of 3 Docetaxel (Nasty stuff)
25 rads.
No re section for DCIS, I was told chemo and radiation would take care of any cells left behind.
I had a meeting with my surgeon on Wednesday and I asked whether I was to have a scan to check effectiveness of what I’d been through.
I believed that 3 months after treatment this was normal.
I was given a long drawn out story about the pros and cons of scans and told I would be best to wait and see if I get symptoms of returning cancers rather than having a scan which could show nothing however I could have G zero cells hiding and waiting to become active at any time, proving a negative scan wrong.
I was also told G zero cells are dormant and are not affected by chemotherapy and can become active at any time and return.
There was so much more I was told, that was in some ways a total back flip to what I was told in the beginning.
Long and short, has anyone else been told this?
I had IDC grade 3 ER + clear margins, 2x lymph nodes with adenocarcinoma and High grade DCIS - margins involved.
I had 3x FEC and 1 out of 3 Docetaxel (Nasty stuff)
25 rads.
No re section for DCIS, I was told chemo and radiation would take care of any cells left behind.
I had a meeting with my surgeon on Wednesday and I asked whether I was to have a scan to check effectiveness of what I’d been through.
I believed that 3 months after treatment this was normal.
I was given a long drawn out story about the pros and cons of scans and told I would be best to wait and see if I get symptoms of returning cancers rather than having a scan which could show nothing however I could have G zero cells hiding and waiting to become active at any time, proving a negative scan wrong.
I was also told G zero cells are dormant and are not affected by chemotherapy and can become active at any time and return.
There was so much more I was told, that was in some ways a total back flip to what I was told in the beginning.
Long and short, has anyone else been told this?
24 Replies
- kmakmMember@Shakalker Actually no! Very fatigued, and I have a lot of pain in my feet and legs. About to take an Endone and turn off the light. I hope you're feeling OK. K xox
- ShakalkerMember@kmakm I hope you are feeling better.
- kmakmMember@Shakalker We just don't have perfect technology yet. Maybe one day. K xox
- AfraserMember3D imaging (last 2 years) makes me a whole lot more comfortable with not having ultrasound. I don’t have a dense breast though (practically transparent now according to my surgeon!).
- ShakalkerMember@kezmusc @kmakm I have a dense breast, my last mammograms (2018) did not show the DCIS or IDC, only an enlarged lymph node was visible and this was overlooked twice, I found a dimple and ultrasound showed the IDC tumour, but not the high grade DCIS so the margins were involved 😳.
Now I still have mammogram and US 😖
Apparently next year Castlereigh Imaging here are going tomosynthesis there is hope yet. - kmakmMemberI think if I was in your position @kezmusc I'd do the same.
- kezmuscMemberIt's interesting isn't it? All doctors have different ideas about follow up options. My first follow up scans were 3 months after finishing treatment. MRI included. Then all three scans the second year anniversary. Dubious results so another lot in 3 months and all three booked again for the end of September for the 3rd year check.
Interesting article that @kmakm put up.
Right now women are recommended to get a mammogram annually after the diagnosis of breast cancer," adding that, when looking at surveillance strategies, it may be appropriate to start thinking about shortening surveillance intervals for these women, rather than adding additional tests.
What about when the mammogram can't see it? No point doing closer intervals then. I can't remember the exact number but it was around 7mammograms in that first couple of weeks. Even with the exact location from the MRI the mammo couldn't see it (maybe a 3D one could have but that wasn't common then). The ultrasound could only locate it when they knew exactly where it was. Too much dense tissue around it. I had only ever had one mammogram about 7years prior to diagnosis as I thought I had felt something but the results came back clear. Hmmmm. "jJst dense tissue, nothing to worry about."
If I hadn't found the node lump I would have been trucking along having a yearly mammo, (or maybe not as I was 45 and under the assumption that you started that at 50) getting clear results. I am sure the outcome would be less than fantastic 5 years later.
I still think that all three together will give the most concise picture so will be continuing to ask for the MRI with the others every year. - ShakalkerMemberWhen I really thought deep about the scan or not to scan and how it was explained to me, I am happy to move on, I am truly over living in “Cancer” land. I am craving a life where it is all behind me.
I had a mammogram and ultrasound on my remaining breast and chest wall and apparently this is ok, I am returning to work and going to do my best to fill my mind with other things, but not stick my head in the sand if there is something that needs further investigation.
Thanks ladies for your comments on my posts and support, I will continue to pop in and out, I don’t think I will ever leave here.
Hugs to everyone xx - kmakmMemberI agree @Brenda5
- Brenda5MemberWhen I first had my diagnosis and staging scans they noted I had large fibroids and further ordered an ultrasound inside and out. They said nothing to worry about and they would keep an eye on them. Never heard anything more so end of this year which will be year 4 cancer free I will discuss with my oncologist about having a ct at the end of my 5 year milestone. It wouldn't hurt to have an all over checkup methinks.