Restless Leg Syndrome (RLS)

Thanks Sandy,

yes it does get me down and my family as well, they thought now I have finished with the surgery and radiation I should be back to my old self!

Sadly I can only say along with the lymphoedema and all the other issues my body is building up while I am taking tomoxifen, my body seems to be rejecting the good life and telling me on a daily if not hourly basis it is feeling the strain of daily doses of tamoxifen after 2 years - yet I am expected to get through 3 more years if not more.  

Eventually I can see I am going to have to decide either to take the risk of recurrence and stop the tamoxifen - I am not going on the others, or find as much relief as I can from the reactions to the toxicity of tamoxifen and live with it.

I am changing my life style to adapt to my body's needs but I hunger for a better quality of life as well.  Why must we suffer for so many years to survive with such a poor life style we wouldn't wish on anyone else?  I am a young woman of 63 in a 90 year old woman's body.  My mind tells me I should be able to do so many things and enjoy my life as a BC survivor however I don't feel like a survivor if I am constantly reminded on a daily basis of recurrence. Will I ever be able to put aside the feeling of BC hanging over me like a bad omen ready to pounce at any minute?  My counsellor tells me I need to accept it and my mind says no way - either I am cured or I am not!  Wish I knew where I stand!

Enough, I will never be able to answer this question - not unless medical research comes up with the answer soon and so I hold up my head and shed a tear now and then - sometimes bold and other times sad - that's my life now and possibly forever....strength comes from support from people like you Sandy and all the others who listen with their hearts and hold out a welcoming hand - I love you all sentimental as that sounds - you are always there when I need you.

Lots of love and many wishes for a happier and healthier New Year from Suzf xxx