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shereejoy's avatar
shereejoy
Member
13 years ago

Reocurrence of Breast Cancer

On 9th March 2011 (age 35, mother of two young children), I was diagnosed with Triple Negative Invasive Ductal Breast Cancer, Stage 3C. I had a right breast mastectomy with full auxillary clearance. 26 Lymph nodes were removed with 13 having cancer in them. I had 3 tumours in my right breast suggesting I had multifocal disease. The largest was 5cm at 11 o'clock. I underwent 6 rounds of Chemo (3 x FEC and 3 x Taxotere), with each round every 3 weeks. I then did 25 days of Radiotherapy. My treatment was completed by 12th Sept 2011. In March 2012 I had a voluntary Left Breast Mastectomy with immediate reconstruction and then in April 2012, I had my right breast reconstructed. In July I noticed a lump in my upper chest on the right. I had an ultrasound, fine needle and core biopsy which told me it was fat necrosis and fibrosis. The lump was 1.8 high and 3 cm wide. I was travelling along ok thinking that it growing was in my head and that I had a biopsy on it and they told me it was all good. So I have just been to get it checked again and a rollercoaster of events then proceeded to follow suit again :( The lump had grown to 3cm wide x 4 cm high and was enulfing my pectoral muscle. I had surgery 1 week ago and they couldn't remove the whole mass and this is the best they can do. I have also been told I cannot have the area radiated again. Chemo is my only option and yet I was also told I did not respond to chemo last time. Is there any information out here of where I should turn to next. Or what chemo regimes I should be asking about. It scares me that chemo is my only option and what if that doesn't work? Any advice or recommendations would be greatly appreciated.

 

Sheree

Age 37

MOther of two children ages 4 & 6

13 Replies

  • Hi Sheree, how are you doing? I sincerely hope that you were given a chemo plan that is working. Best wishes Mary
  • Hi Sheree, how are you doing? I sincerely hope that you were given a chemo plan that is working. Best wishes Mary
  • Sarah, I am just waiting on my oncologist appointment on Monday... and it really can't come quick enough... am desperate for a plan. I really don't know what the plan is but they are pretty confident I can't have radiation again :(

    Today I went and seen a gyny oncologist as on the ct scan it showed something on my ovaries. Just hoping that is not ovarian cancer at this stage, which I am obviously at high risk of.

    I was just really disssapointment the other day after seeing the rads oncologist and my surgeon. with them suggesting there is still tumour their and they can't surgically remove anymore and also I more then likely won't be able to have more radiation as I have been radiated in this area before. :(

  • I think if it is going to return it will do so in the first 5 years and then I think once you are past that milestone the odds drop considerably. Well that is what I know about it. Like you I cruised through the first time and really thought I had beaten it so this diagnosis has really knocked me especially since the doctors got it wrong for me. I feel I 4 months ago would have given me more of a fighting chance :( good luck to you honey. I think if there is anything I have learnt... We are all unique regardless of the tnbc diagnosis xxxxx
  • Hi Sheree,

    This is my first post, and before I found this page I had been reading your older posts and was going to try to contact you, your well wishes for other women and spirit to help were very touching. I wish you all the best for your next stage of treatment.

    I was diagnosed with bc on 22/10/12, as tnbc on 11/11/12, have had lumpectomy (3cm lump) with lymph nodes clear, start chemo on 3rd dec, with a mix of Fec T for 6 tri weekly rounds and then 6 weeks of radio. i have been feeling super positive and really lucky about my situation, feeling like I've almost beaten this before I've even begun (delusional??) but tonight is the first night I've really realised what the implications of having tnbc may be, but also being 37 with a 3yo dau and 6yo son (no family history) I will continue to keep to keep my chin up and hope you can too.

    I find it a bit crazy but I am completely at calm with needing chemo and radiotherapy, what bothers me most is the unknown future.

    To anyone else reading this also, are "we" (tnbc women) bound to have recurrence issues, does anyone know a tnbc woman who after a number of years has not had recurrence? I certainly don't wish to send out negative vibes, I am just trying to wrap my head around my situation.

    Thanks for listening.

    Vicki