I had a recurrence after ten years even after a double mastectomy chemo and 5 years of Tamoxifen. It's not a situation any of us want to have to deal with. Mine had progressed to the point I had to have chemo and rads, an oophorectomy and I'm now 18 months into AI treatment. I started on Letrazole and changed to Anastrazole 6 months ago. I wish I could tell you it's been uneventful, but there are certainly reasons there are so many negative reports about hormone treatment.
Regardless of how unpleasant AI can be, it beats the hell out of the alternatives--as you and I know from first hand experience. Unfortunately there are no guarantees that any treatment works, but if AI is the only option there is little choice except to take them. I'm having a month break at the moment to try to determine if the aromatase inhibitors are behind all the aches and pains, fatigue and brain fog or if the other treatment has caused irreversible damage. Even if they are the culprit, I'll still have to bite the bullet and resume taking them. Hang in there, you just have to do the best you can. Marg xxx