Forum Discussion

donnafischer's avatar
10 years ago

Remembering to exhale.

 

So, after three hours in the hospital, and cancer clinic, I'm home, snotty and all. My blood pressure is back to more normal (it was 180/87 after last weeks disastrous visit. The anesthetist isn't thrilled i have a cold but basically said we need to do this surgery asap so unless it goes to a full blown chest infection he's happy not to put it off. I am at more risk of asthma attack or developing a chest infection during and post surgery even though its just a cold, but the risk is minimal. We then went on to see my McGrath breast care nurse. She was able to tell us so much more about the pathology. They have to look at and treat the cancer as though it's two separate identities. The cancer in the breast isn't the normal common cancer (of course I have to be freaking special) My breast cancer started off in the milk ducts. The clear margins were around most of the tumour (10mm clearance) and there was only one or two spots where it narrowed. So we are hoping that if those spots were clear, they wouldn't even be considering mastectomy. I know it's only a breast, but after discussing the risks during and after this type of surgery, and the problems that come of this type of surgery, if I can avoid it I would like to do so. But at the end of the day, if a mastectomy saves my life, I can deal with that. There is no choice. SO given i have just that little bit of narrow margin, and big boobs, and the fact that my actual surgeon hasn't seen my chart yet, we are keen to discuss all options. But the final decision is up to the doctor Now the sentinel nodes that were removed in the last surgery had large deposits of cancer in them. So that's why all the lymph glands have to be removed and then chemo therapy and possibly radiation to the armpit as well. The amount of cancer cells found in the lymph glands to be removed will determine how much and long chemo I have. Worst case scenario is 24 weeks of chemo therapy. And it will be the type of chemo that makes my hair fall out.
SO the lovely lady from elective surgery is taking my file to the surgeon on Thursday to discuss my options with him and hopefully get me in to see him asap (possibly monday morning late.
Hubby and I came away today with such a more positive feel, like we are slowly clawing back a little bit of control, and have so much more information.
Have I also mentioned how much I LOVE my McGrath Breast Nurse xxxx 

 

 

 

 

 

 

to help get your body out of fight or flight, roll up a beach towel and put in under your thoracic spine, lying on floor for 10 mins before  bed and let your shoulders drop down and open up the chest. circular  breathing down deep in the belly.Get some red tinted or orange glasses-13 to 20 dollars to wear in a low lit envt at night to neutralise the blue light we are overstimulated with.

5 Replies

  • When I got my results from the mastectomy & SNB they found I had 2 types of cancer Donna the original invasive lobular & LCIS but with a 10 mm clearance.

    Like you Donna the 1 node they had taken came back positive so I go on the 9th March for my nodes removed, not looking forward to it as I have had flu since Friday with nausea & I am still recovering from the last surgery. I had a pre admission appointment with the anesthetist today & he is happy for the op to go ahead as arranged. At least my appetite seems to be returning today.

    Wishing you all the best & will be thinking of you.

    Eileen

     

     

     

  • My re excision was done  through the same scar as before and you can't even tell he's been in there twice... Nice thin line healed perfectly... 

  • Aren't the MBCN's amazing?!

    My first one was like an Angel...i would wake up from surgery to find her standing there! She explained EVERYTHING and was so attentive and reassuring...I had to change as I am having chemo closer to home now and although my new BCN answers all the same things and is reassuring too I am yet to meet her and she is very hard to get hold of (including when the hospital staff are trying to find her too!) I've since been told that they are down two nurses, and are looking to replace them....The McGrath Foundation is something I've always donated to as is the Cancer Council, but now more than ever I've seen first hand what those funds are used for...I've said many times that I feel "safe" and really cared for.....they really are special people..

    Good luck with your decisions Donna! They are really tough ones to make but like you said if they save your life, you deal with it! 

    -Tracy

    Xx

     

  • Hi Brenda, I've got Dr Van Rooyen. Like you the job already done is lovely and neat. We're hoping if he is recommends breast conserving surgery that he will go through the same incisions. I've spent ages getting them healed and looking good! Megan was very impressed :)

  • Hoping you get it all explained and sorted next week then. Is it Dr Siv? He did my axillary clearance and honestly it was the neatest job I have ever seen. The scar although long is tiny and in years to come would barely be noticed in an open sleeve shirt. Perhaps their thinking on the mastectomy part is that would be easier to do a reconstruction in one nicely shaped piece down the track? Whatever gets you nice clear margins will be good though. Thinking of you, and keep us updated. xxxx