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Chichi's avatar
Chichi
Member
13 years ago

Recently diagnosed triple neg *sob*

Hi I hope I'm in the right area. Im a mum to a 5 yr old girl i was diagnosed in April with triple neg BC. Im stage 1 with no nodes involved. Had lumpectomy. I'm scared out of my wits. I can't stop googling about it and what I read scares me. My surgeon, who specialise in breast cancer, says I have nothing to worry about. Yet I don't know why he's being so optimistic because from what I've been reading triple negative can come back/reoccur. What I'd like to know is why some people from this site with triple neg have had a mascetomy. I told my surgeon to remove (mascetomy) my breast but he said that it wasn't necessary. I'm having 6 rounds of chemo then rads. I really want a mastectomy. Am I over reacting??

13 Replies

  • Hi Chichi

    i agree with the previous comment from SueVR as far as reading too much.  I know when first dianosed all you do is google everything possible about your cancer, then you find blog/comments both horrific and also the more successful and happier comments.  I also am triple negative,  stage 3, 2.5cm lump, had a lumpectomy, 2 lymph nodes removed and all clear. Have finished all my treatments of chemo. and radiotherapy on 12 April.  I am not taking any after chemo. medication. Although I have seen a naturopath recently who has also worked in oncology and also still a registered nurse. Told her I was triple negative and she has recommended to take some tablets once a day which will help called EstroSense and Methyl Max obtained only by naturopaths.  I do not know whether they make a big difference as I have not asked my oncologist as yet only because this girl is extremely experienced in both lines of work I have trusted her advice.  But i am healthy now and both oncologists and doctor have been happy with my recovery, so don't worry, you will get through your treatments and it will seem forever but stay focused on getting through your treatments and rest when you need to and keep busy between treatments, do what you normally do when you are feeling up to it and stop reading all those blogs.

    Take care and good luck, this site is a great one for support, so keep reading BCNA only, nothing else. 

    Debbie  x

  • Hi Chichi

    i agree with the previous comment from SueVR as far as reading too much.  I know when first dianosed all you do is google everything possible about your cancer, then you find blog/comments both horrific and also the more successful and happier comments.  I also am triple negative,  stage 3, 2.5cm lump, had a lumpectomy, 2 lymph nodes removed and all clear. Have finished all my treatments of chemo. and radiotherapy on 12 April.  I am not taking any after chemo. medication. Although I have seen a naturopath recently who has also worked in oncology and also still a registered nurse. Told her I was triple negative and she has recommended to take some tablets once a day which will help called EstroSense and Methyl Max obtained only by naturopaths.  I do not know whether they make a big difference as I have not asked my oncologist as yet only because this girl is extremely experienced in both lines of work I have trusted her advice.  But i am healthy now and both oncologists and doctor have been happy with my recovery, so don't worry, you will get through your treatments and it will seem forever but stay focused on getting through your treatments and rest when you need to and keep busy between treatments, do what you normally do when you are feeling up to it and stop reading all those blogs.

    Take care and good luck, this site is a great one for support, so keep reading BCNA only, nothing else. 

    Debbie  x

  • Hi Chichi

    i agree with the previous comment from SueVR as far as reading too much.  I know when first dianosed all you do is google everything possible about your cancer, then you find blog/comments both horrific and also the more successful and happier comments.  I also am triple negative,  stage 3, 2.5cm lump, had a lumpectomy, 2 lymph nodes removed and all clear. Have finished all my treatments of chemo. and radiotherapy on 12 April.  I am not taking any after chemo. medication. Although I have seen a naturopath recently who has also worked in oncology and also still a registered nurse. Told her I was triple negative and she has recommended to take some tablets once a day which will help called EstroSense and Methyl Max obtained only by naturopaths.  I do not know whether they make a big difference as I have not asked my oncologist as yet only because this girl is extremely experienced in both lines of work I have trusted her advice.  But i am healthy now and both oncologists and doctor have been happy with my recovery, so don't worry, you will get through your treatments and it will seem forever but stay focused on getting through your treatments and rest when you need to and keep busy between treatments, do what you normally do when you are feeling up to it and stop reading all those blogs.

    Take care and good luck, this site is a great one for support, so keep reading BCNA only, nothing else. 

    Debbie  x

  • I agree that googling can get you in trouble with the fear factor...but there is always positive news with research and I admit I can't help but have a look every few days to see what's new.  Staying positive is the key and I know it is really hard when you feel crap all the time but as you get through each part of treatment you come further out of the fog.  I am on my last 7 radiation treatments after only completeing 2 chemo due to gut complications (diverticulitis and abcess). So far have managed to avoid total large bowel resection.   I chose to have a lumpectomy, being as positive as I could...am yet to get tested for BRCA 1 due to family history and just take every day as it comes being as positive as I can.  We will get through this and move on having learnt a lot more about TNBC, your own strength (we are strong as hell, us women) and that people around are so supportive and want to do what they can to help.  The research is growing in leaps and bounds so hang in there, put aside you doubts and know that you will survive along with the thousands of others that have.  Take care.  Deb

  • Thanks for yr reply. It made me feel better. I don't know why but I have this intense urge to have both my breast removed & my ovaries too.