Forum Discussion
Bindi
13 years agoMember
Hi ChiChi
It's so scary to be diagnosed triple negative, isn't it? I was diagnosed last October (Stage 1, no nodes, lumpectomy ). I felt like I'd had my lifelines taken away, I was sent straight to dose-dense chemo (4 AC/4 Taxol), no phone a friend!
You can feel very alone when friends tell you about their/relatives breast cancer and you think "Yes, but mine's triple negative, it's different".
I have 10 and 6 year old girls so I understand your fear of a recurrence. And no, you're not over-reacting to feel the need for a mastectomy and to get those ovaries out too. You're in survival mode, you do what it takes to protect yourself. But, take a deep breath, allow the fear, let it pass. You have time and you have choices. No need to react to the panic. Explore your feelings, get second opinions, find your support (forums, local support groups etc). You may still feel mastectomies is the way to go.
You still have your treatment to get through so be gentle on yourself. Give your poor brain a rest and know there's no hurry to decide!
Do you have a family history? I do and I'm BRCA1 so I've just had bilateral mastectomies with immediate scarless lat dorsi reconstruction. For more high risk info you can check out Pink Hope www.pinkhope.org.au.
Hope this helps. Sending you love and courage xxx