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Sorrentino-Mari's avatar
14 years ago

Radiotherapy help!!!

Hello dear girls, it has been quite a long time since I was here for last time (chemo consumed all my time! ah!)

Well, my chemo is done, and I didnt feel major side effects, but fatigue is quite an issue!! My hair is growing back and I cannot complain as chemo was an interesting experience, I am very happy with the nurses at the chemotherapy unit, they are simply great!!...I am in Herceptin now every 3 weeks.

I need a bit of help I was wondering if I can get advices about Radiotheraphy...I already talked to my radio-oncologist and he wants me to do 4 weeks of radio, it will decrease the chances of recurrence by over 20%. To be more precise at the moment my chances of recurrence are 30% without radio, but if I decide to have radiotherapy it will be only around 10% to 6%. But I need a bit of guidence here..Does anyone have radiotherapy? How often? For how long? Where in your breast did you have it? Side Effects? Long and short term side effects? Are your lungs ok? How your breast has changed? Is it really smaller or harder? ohhhhhh so many questions!!!!!!

Thanks for your time and help I really appreciate any thoughts!!!! 

Have a fantastic week,

Leonor (needing help!)

14 Replies

  • Thanks for adding that info as well Leonie, I completely forgot it.

    Dale

  • Yes, hindsight is a wonderful thing isn't it, if only we knew........but I agree, radiation is worth doing and just another tool to work in our defence.

     

    Dale xx

  • Dale has given you a very good picture of what happens with radiotherapy.I had a lumpectomy back in 2003 and was told I HAD to have radiation afterwards.I went for about 6 weeks and by the end I was quite tired and my boob was glowing like a hotplate but my skin never broke down.I had no problems afterwards with my lungs or heart.However,my boob was firmer and uncomfortable (not painful)from then on. Unfortunately,7 years later,I was in the 8% whose cancer returns in the same breast. So last year I had a mastectomy and chemo.You will find that radiation treatment is nowhere near as hard as chemo.It's scary at first but you get used to it after a few sessions and it doesn't hurt.If I could look into a crystal ball then I would have had a mastectomy in the first place but we don't know.I think you would be taking more of a risk if you don't have radiation- 8% is better odds than 30%.

                                   Tonya xx

  • Hi Leonor,  I finished a course of six weeks radiotherapy four weeks ago.  This was every week day at the same time.  It may have taken 10 - 15 minutes or so and is really nothing to fear.  The first time you go you will have about a one hour session where the ?radiographers do mapping, which is where they take measurements of the area that will be treated.  They will also mark the area in certain spots with single black dots, which are actually called tattoos and are the size of a pin head, these last forever.  I must admit they can hurt just a little to have done, but hey, we have experienced worse.  Each time you go in for treatment  you are placed in the same position and you must not move at all!  You put your arms behind your head and hold on to two handles for the whole time, until you are told to put them down.  There is no pain at all and the machine zaps you for a short time, (maybe ??four times) each time.  You will find you wait and count each time and get to know the procedure very well.  After a short time, maybe a couple of days I'm not sure, your skin will begin to change colour and at times you really can feel the inside of your breast "cooking" a little, this doesn't hurt but feels weird.  By the time the weekend comes around you will be looking for a rest, but over that time you can still feel this "cooking" feeling and at times you feel warm (bit like a hot flush).  You feel better over the weekend and then the next week begins and it is all replayed over again.  I found that towards the end of  treatment my underarm started to get red and started to get a little sore, I had only read that it was like sunburn, but by the end of treatment and for about two weeks after (as you are still cooking) it became very red and very sore, and I felt the "like sunburn" was very unde emphasized.  After my fifth week of treatment, the procedure changed and the only area that was treated (for a week) was the area where the lump/s were taken out.  They use a much smaller machine with, guessing I would say about a 1 & 1/2 inch square diameter.  This is great because it gives your underarm a well deserved break.  It is for a shorter time and they do this for five days and then it is all over.  I myself didn't have any problems with it, the doctors kept asking me how I was coping with the lethargy, but I can honestly say I didn't find it a problem at all.  I can honestly say that apart from having my life governed by radiotherapy for six weeks, the "sunburn effect" was worse than I imagined.  The nursing staff only ever offered me dressings and solugel, which to me wasn't quite enough to control the pain I had, but hey I survived and there are worse things in life.  The worse part was the lymph node scar that had burnt and the bra rubbing on it.  I had to go braless toward the end and just had to let "the girls" swing free.  When radiation finished I was able to treat the condition myself and what worked for me was bepanthan smothered on at night.  It is amazing though that when the burn started to heal, how quickly it did and now everything is fine.  The treated "boob" is a little firmer than the other one and maybe a little bigger but all the skin is now fine.  I feel that radiotherapy is just another tool to use to help combat this horrendous disease.  It is quite okay to go through and from my experience, nothing to be overly worried about.  It does rule your life for six weeks and the residual burning can be nasty, but of course everyone copes differently. I guess it is something we just have to do for our own peace of mind.

    I hope I haven't woffled on and this has been of some help to you.

    Best wishes, Dale xx