Forum Discussion
Ausmum2
4 years agoMember
@ajs Sorry, I missed the questions. Basically my burns were considered "in the normal range" for those very fair skinned and with lots of allergies/reactive skin. All of it was doable, just very hot and bit uncomfortable (I also had a large area of radio, all lymph nodes above and below collarbone, all central lymph nodes, all armpit lymph nodes on affected side as well as chest wall) - so about 25% of my torso. When it was at it's worst I did have "proper" pain relief and it was taken with panadol as well as I did need it.
I was VERY tired (in bed most nights by around 7pm for a 12 hour session.... but it was a bit broken as I had to sleep on my back only) - it reminded me of being post surgical basically (I had a double mastectomy March 2021).
I'm still quite tired (but I have done 6 rounds of surgery, 16 chemo cycles and a lot of radio - 25 fractions but as you can see a lots of gray units in that dosage) and I do have one set of surgery to go (just waiting for the covid wave to pass).
It's totally doable. I've been really blessed with an awesome and supportive team across the board. The nurses have kept patching me up and cheering me on and the team of specialists have encouraged me to tell them about my symptoms and side effects and we've treated them with all they can offer me to keep me comfortable, which has worked (and I've learnt to "not put up with" stuff - but to speak up!) And the radiological oncologist has a wicked sense of humour that helps too :)
You've totally got this!
I was VERY tired (in bed most nights by around 7pm for a 12 hour session.... but it was a bit broken as I had to sleep on my back only) - it reminded me of being post surgical basically (I had a double mastectomy March 2021).
I'm still quite tired (but I have done 6 rounds of surgery, 16 chemo cycles and a lot of radio - 25 fractions but as you can see a lots of gray units in that dosage) and I do have one set of surgery to go (just waiting for the covid wave to pass).
It's totally doable. I've been really blessed with an awesome and supportive team across the board. The nurses have kept patching me up and cheering me on and the team of specialists have encouraged me to tell them about my symptoms and side effects and we've treated them with all they can offer me to keep me comfortable, which has worked (and I've learnt to "not put up with" stuff - but to speak up!) And the radiological oncologist has a wicked sense of humour that helps too :)
You've totally got this!