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PatsyN's avatar
PatsyN
Member
8 years ago

Radiation for Stage IIIC

I had my first appointment with the radiologist on Friday. She was quite young, slightly plump and due to her eastern European upbringing, she had spotless, beautiful skin. She looked about 25.
She asked if I minded if a student witnessed the consultation. Of course not, I said, the more people listening, the better.
The student was even more beautiful that the radiologist and I swear she was not more than 20. I was feeling old and haggard at 63.
Those 2 younguns gave me the best consultation I've had since the start of my cancer. "Any questions?", she would say to me and I'd say no. "Any questions?", to the student, and she always had heaps of good ones, lol. I want a student at every consultation!

I've always felt from the very first visit to the breast surgeon and then oncologists (4 oncologists, in total!) that they weren't being frank with me. It was like we all knew the severity of my situation, inoperable (but not untreatable?). No one wanted to look grave. Everything seemed so routine and cheery. That jellyfish feeling that I got from the start of chemo (I called it gollywog body) was considered an unusual anomaly even though I see (via this forum) that lots of women suffer from this. Basically I got the feeling that any side effect I had was not worth mentioning as it was to be expected or something they'd never heard of before.
Expect anything at all is what they should really say. I went into my mastectomy thinking that this was it. The finish. They'd cut it all out. No one ever suggested that I might be back in surgery within the month, for a bigger surgery, until my mastectomy post op visit.

My radiation girls have not left me in mystery. The lovely radiologist was straight with me. She explained all about where the metastatic nodes are above and below my collarbone, (no clear nodes were found at level III). There's still invasive carcinoma in my pretty little scar line. My lungs and throat will be in the way, she said. She will try to do as little damage as she can to them. "I'm gonna have to fry you. You might need skin grafts". I said isn't that called reconstruction? She laughed.

And then she said very matter of factly, "you've got no choice, so let's get on with it".

I go back tomorrow for planning which she said could take 2 to 3 hours. Then she's gonna slice me into 1mm strips via all the scans and xrays to minimize the damage to my lungs and throat. She said that could take at least a week, maybe more.

After the radiation (6 weeks) there will be more targeted scans to search the rest of my body.

Is there anybody out there who had Stage IIIC (grade 2 cells) and then radiation for their cancer? I'm wondering how badly burnt one can get?

I'm glad those girls were straight with me. Forewarned is forearmed. There are some incredible new materials to help heal burns and she has already suggested Strata X. I'd mentioned using Stratamed on my scar line (lol, all in vain) and that's when she mentioned 
Strata X. "We don't use it cause it's so expensive, but if you want to you can buy some and we'll use it on you".

Done and dusted I said. My pharmacist will order it in tomorrow.




8 Replies

  • @PatsyN, I'm glad your feeling more positive. I was more very sore than anything else. Cold water in a spray bottle from the fridge was bliss when i needed some relief as was pure aloe vera spray kept in the fridge . Sorry your sister had such a rough time. Sounds really awful. 
  • Oh Patsy how awful for your sister. Hindsight is a wonderful  thing. I guess if you need skin grafts after, well  you will deal with that face on, with the strength you have shown so far. (I know you probably don't feel it but many admire your strength). So bring it on. 
  • @LMK74
    Thanks for the pic. It has encouraged me enormously.
    If that's the worst I can expect (no disrespect to your pain and suffering) I'm feeling very positive.
    She said she'd be burning me to the bone!
    Maybe it's a terminology thing, lol. 
  • @primek
    Thanks for your kind words. 
    I've been looking at photos of women post radiation and it all looks doable.
    My sister went thru radiation for throat cancer which melted her skin and didn't work.
    She had her voicebox cut out and because of the damage caused by radiation, she needed skin grafts and was never able to have a prosthetic fitted which would have enabled her to talk.
    I remember at the time thinking I would have gone straight for the prosthetic and skipped the radiation, but she was trying to save her voice - I don't ever ask her if she regrets that decision.
  • I am glad you had an excellent consult with the radiologist. I have no words of wisdom about the radiotherapy but hope all goes as well as can be expected and you heal quickly. X
  • I finished my radiation 2nd January, it was part of my neoadjuvant treatment for stage III.  My radiologist from the first meeting said he was going to give me the maximum.   Needless to say (and without trying to scare you), I was burnt through, blistered and in incredible pain.  Radiation is cumulative and it was only the last 10 sessions that everything started.  I'm now 2 weeks post surgery having a mastectomy and immediate reconstruction and I'm still very discolored from the radiation.   I also have a large discoloration scare on my collar bone and neck.  As painful as the last 10 sessions were, I would do it again in a heart beat....life is worth it.    Lots of people sail through radiation with minimal issues and you still might be in that category, so don't worry before you need to, also the radiation team with treat your burns with gels and special bandages and if needed prescribed pain meds - which all helps.  You are most welcome to PM me anytime.  Jen   
  • Hi @PatsyN, I was grade 3 stage 2 with 2 nodes positive out of 12. I had right mastectomy and axillary clearance. Found out post surgery 1node got left behind(just brilliant). I had six weeks of rads to chest, neck area . I did burn towards the end, like really bad sunburn. My throat was very sore from day 4 of rads and continued to fluctuate in severity. I posted a pic of my burns which you can look up if you check my posts . Each person is different in how they react to radiation,some people don't burn at all. I found it all doable and staff were lovely.
    Best of luck and hope this helps a bit.
    Xo