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Bearteggie's avatar
Bearteggie
Member
12 years ago

Putting the set backs behind me

I am happy to say that all went well with my second last daxetocal chemo treatment yesterday.  Even though I was at the hospital for 7 hours seeing oncologist first, then psychologist and Cancer Nurse followed by treatment I came home reassured happy and ready to put the dramas and setbacks of last round behind me.

With the help of psychologist I have gained my confidence back in my clinical team and we have decided that it best if I just remain hypervigalent with the administrative side of things.  

Ladies if you are admitted to hospital and they say they will ring you to make an appointment don't wait for them, ring yourself and follow up.  I waited 6 days and then rang and just as well I did and my oncologist and cancer nurse said the same thing.  My PICC had been removed and they needed a plan for my next chemo treatment.  As it was it came down to the wire and they could only fit me in to have port fitted the day before my treatment. 

With more information being given to me when I had my port in and how it works I am now not worried about it at all.  As they say "knowledge is power".  Unfortunately, it is only the clinical staff who are doing these procedures who can really explain the workings of them.  I had been so anxious that I would get a DVT from the port like I did from the PICC.  Now that I under stand the design differences I am thankfully reassured that this won't happen.

I am enjoying today as feeling good.  I know that in two days time I will be at my lowest and I think this time I will be able to take it in my stride.  Finally, I feel some peace of mind and am excited that I only have one more treatment to go.

Joy 

 

 

5 Replies

  • Bearteggie's avatar
    Bearteggie
    Member
    12 years ago

    Lovely to hear from you Robyn and I always appreciate your encouragement.  Yes, I am feeling good again today and much more optimistic about my clinical team and my progress so far.  Last cycle because of the scary set backs I didn't cope at all well and took myself to very dark places and was racked with fear so it is a relief to be back in the "here and now" and enjoying each new day and taking pleasure in setting and reaching small goals and making it through each day more comfortably.

    Hope you are feeling really good now.

    Lots of love

    Joy xx

  • Bearteggie's avatar
    Bearteggie
    Member
    12 years ago

    No it isn't long now and again today I am feeling confident and happy and managing pretty well both physically and emotionally.  I expect that will change a litte over the next couple of days but it is all normal in this given situation.  So long as we have more good days than bad we can be grateful.

    I am feeling much more confident with my clinical team now and just know that administration needs be vigilantly checked on.  

    Take care Donna.

    Joy xx

     

  • Bearteggie's avatar
    Bearteggie
    Member
    12 years ago

    Good on you for going back to one day at a time because that is what we have to concentrate on.  Yes, I woke again this morning after a not so good night's sleep - hot flushes but still on dexamethasone for today so full of beans this morning and catching up on ironing.  Went for my 45 min walk and am grateful that I don't feel too bad.  If I am only down and really out for two to three days this cycle I will be pretty happy.  

    Yes, we are doing this Hazel and it won't be long now and we will be done with the worst part.  It has been a challenge keeping our emotions in check and managing our set backs and side effects and it seems overwhelming at times but we have come so far.  Hang in there and take care Hazel.  You are one tough little cookie.  

    Lots of love

     

    Joy xx

     

  • Robyn_W's avatar
    Robyn_W
    Member
    12 years ago
    Good on you Joy:) Each round is so different isn't it and presents with its own challenges.You have certainly had your fair share,and you have coped so well with them eventually:) I love this network for the experiences we share,and the way that we help each other.I can't remember life before BC and the blog!!!!, Take care Joy,and I hope that you are feeling OK.Cheers xoxRobyn
  • mgndam1603's avatar
    mgndam1603
    Member
    12 years ago

    Not long now you are lamost at the end, I am so pleased that you are feeling good and more confident about things.

    It is such a terrible journey for us but to not feel confident about the team we are working with must make it so much harder.

    Take care

    Donna