Forum Discussion
Sirrah
7 years agoMember
Hi @AllyJay I love that u put us in the younger category! I am 62 so just a couple of yrs older than you, and yes before this sad and sorry episode I felt like a "youngish and fit for my age person, who exercised everyday, and as I am retired didn't think I stressed much for a Type A, likes to b in control personality!
Regarding the gerontologist comment, that is a coincidence because one of the Drs on my Neuro team is changing his speciality from ? to gerontology. Do to the high incidence of neurological problems of the elderly like stroke, Parkinsons etc Dr.T is working with the Head Neurologist and because he does all the procedures and day to day stuff, eg lumbar punctures I have seen him the most. He even rings me once a week! So besides my GP he is actually my gatekeeper at the moment. Unfortunately he and the Oncologist don't sit down together but have rung each other occasionally. Dr.T has organised some Physiotherapy and Speech Therapy which I will start soon.
Btw I have since noticed my reference to being susceptible to colds and flu, was hilariously autocorrected to flies in my last msg! Got to watch those flies too, lol!!
With reference to your first post about not knowing if I was going to have 12x Paclitaxel, I have pretty well decided not to go ahead with that either. As I explained to my original Oncologist I am too worried about the similarity of the peripheral neuropathy that I experienced before with AIDP (Acute Inflammatory Demyelinating Polyradicular neuropathy) aka Guillain Barre Syndrome.
Unfortunately that doesn't leave me with so many chemo options but my 2nd opinion Oncologist who I think I will b changing to, says there r older style chemo drugs she could mix for me if I decide to go down that route when my neuro team give me the ok.
well, wishing you continued improvement in your health, Pauline (Sirrah)
Regarding the gerontologist comment, that is a coincidence because one of the Drs on my Neuro team is changing his speciality from ? to gerontology. Do to the high incidence of neurological problems of the elderly like stroke, Parkinsons etc Dr.T is working with the Head Neurologist and because he does all the procedures and day to day stuff, eg lumbar punctures I have seen him the most. He even rings me once a week! So besides my GP he is actually my gatekeeper at the moment. Unfortunately he and the Oncologist don't sit down together but have rung each other occasionally. Dr.T has organised some Physiotherapy and Speech Therapy which I will start soon.
Btw I have since noticed my reference to being susceptible to colds and flu, was hilariously autocorrected to flies in my last msg! Got to watch those flies too, lol!!
With reference to your first post about not knowing if I was going to have 12x Paclitaxel, I have pretty well decided not to go ahead with that either. As I explained to my original Oncologist I am too worried about the similarity of the peripheral neuropathy that I experienced before with AIDP (Acute Inflammatory Demyelinating Polyradicular neuropathy) aka Guillain Barre Syndrome.
Unfortunately that doesn't leave me with so many chemo options but my 2nd opinion Oncologist who I think I will b changing to, says there r older style chemo drugs she could mix for me if I decide to go down that route when my neuro team give me the ok.
well, wishing you continued improvement in your health, Pauline (Sirrah)