There are just some things you can't possibly understand unless you have felt them yourself. That goes for most things, you can empathize but not on the same level as having been through it.
I guess the point is that when you do your chemo education you get a list of possible side effects, watch a little video and talk to the nurses.
It's kind of like. Here's what might happen.
Take that for that
If this happens do this
Stay away from sick people
Don't poison any one around you
Don't expose your partner and family to the toxic drugs that's being injected into you it's not good for them LOL!
The list of potential long term nasty effects is quite short and the percentages on paper of these things happening is quite low.
So I think the problem is that you expect once treatment is finished it's finished, you feel better and life returns to normal. That is the part that is missing. The part about how long it might take to feel normal again. The lost feeling you get when treatment does end and you really don't know what to do next. Just go back to your old life? Should you be doing something greater, more worthwhile, running marathons, climbing mountains? Or should you just be happy you can go back to your normal life and continue? Is it ok to feel pissed off that had you have known you may have made different choices along the way? Could you have been more prepared? Possibly or maybe not until you were there.
Maybe there should be a pre treatment counselling session included prior to starting treatment on the emotional effects rather than just clinical side effects?
Not sure