Please excuse my venting....grrrr..
My apologies in advance for this post.....BUT I NEED TO VENT!
OK. So I am diagnosed with EBC in 2008. I have a lumpectomy (& nodes removed), chemo, radio, trial drug Lapatinib (instead of Herceptin...
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Thanks Amanda. Yes I agree with what you are saying. I was told that the drug company that funded the clinical trial of Lapatinib (otherwise known as Tykerb) will fund my Herceptin this time around. As for chemo, I am also hoping this will be government funded too if I need it. I'm not sure what the difference is between a PET scan and a CT scan. I had a CT scan where they inject radioactive material, you go away for 2 hours then come back and have the scan which examines the chest area, abdomen and pelvis (all organs). The I had a bone scan that tests all bones including skull.
As you can imagine, I am now very skeptical of clinical trials. I dont think I will be jumping into any clinical trials any time soon! (unless of course the treatment options are very limited).
I will certainly be asking questions on Tuesday and sourcing my own scans and tests etc if I feel I need extra monitoring...then at least I will feel more in control and that I am doing everything I can!
Bye for now,
Celeste xx