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pomjane's avatar
pomjane
Member
13 years ago

phyllodes

HI my name is Jane I have been going through this journey for nearly 2 years had my first lumpectomy which was phyllodes October 2011.Now exactly a year on after being told it wouldnt reoccur again I am having surgery on Tuesday to remove my 2nd lump which has doubled in size . Fed up of feeling like its nothing by other people and there insensetive comments I wasnt even ellegible to see the breast cancer nurse as its not classed as cancer feel like no one understands me so glad I found this site has anyone else experienced this ...

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  • knutter1's avatar
    knutter1
    Member
    13 years ago
    Hi, I am a two timer myself and have been told by my original surgeon this was a one time thing don't worry it won't be back. It did and I was mad too! It was as if you are lost in the shuffle with an oddball diagnosis and nowhere to turn but your not. There are others and we are here for each other.
  • roan2311's avatar
    roan2311
    Member
    13 years ago
    Hi Jane, I'm sorry to hear that you have to through it again. I know it's one of my fears since getting a lumpectomy in February for the first time, and I know of one or two people who have had another lump after a year. It's really frustrating when people don't know much about (including doctors) or accept it as breast cancer. Feel free to post your progress. And hope that it doesn't come back. Take care Rosie