Phyllodes tumours have returned!

Hi Donna. I had a double mastectomy for the same at the end of November. I already had implants as I'd lost a lot of my right breast in my mid twenties to fibroadenomas. Exactly one week after the mastectomy I had to have the implants removed as I had haematomas develop. The mastectomy was nipple sparing, however I've lost my left due to the complications. I have pain, which can be sharp, but is quick to resolve with no analgesia. I ticked all the boxes for typical phyllodes tumour, even down to age, location and side so thought, and still think double mastectomy was my best option. I've been advised to wait at least six months before reconstruction, and while my chest looks less than pretty, there are benefits - especially in the heat. I've learnt to buy tops that disguise the loss, as I'm still too tender to wear falsies at present. I think Katie offers very sound advice, talk it through and think it through, but don't overthink it. I have rough days, yes, I have great days yes. You are so young, and I feel so much for you - my second surgery was at age 26 - and I was never told exactly what I had - just that it looked 'dodgy' and the cells were 'funny' but didn't need any follow up. Now I wonder if it was a phyllodes, but impossible to find out as mid nineties in the UK, and I had a young baby at the time, so they were quite uncommunicative. Take the time to ask the questions, and remember there are no dumb questions. Love and luck to you. Whatever your decision. Xxx