Phyllodes Tumor - Anyone else out there?
HI All, well this is my first post as I have not been quite sure where to start. I would be interested to know if anyone else out there on this Network has been diagnosed with a Phyllodes Tumor (of a...
Forum Discussion
Hi Julz,
Sounds like you have had a really rough time with recurrences and I am very sorry thta you have had to go through this so many times. If you read through the blogs on the Phyllodes tumor support group and also post your questions I am hoping you will get some of the support you are looking for and some information.
There are two facebook support groups which you may or may not be aware of. They are both closed groups "Phyllodes Support Group" and "Cystosarcoma Phyllodes, Phyllodes Tumors or Whatever it's called." The Phyllodes Support group has well over 500 members from all over the world and there is a documents page on there with various articles that you may want to look at.
Wishing you all the best for your next surgery. I am wondering if you have been offered any other treatment options besides lumpectomy since you have had recurrences?? Please ask as many questions as you need.
Hugs Katie.