Phyllodes Tumor - Anyone else out there?

I've been trying to get someone in the medical profession to listen to me and even printed out some reports from the internet to give them. I got in to see an oncologist who treated me like I was an emotional crackpot. His view was that because my lump had been there for 20 years before it turned nasty, it would take another 30 years for it to come back. I left feeling like an idiot. I will check out the group you told me about. Thanks for replying and your advice. Cheers, Marine.