Phyllodes Tumor - Anyone else out there?

Hi all, its been a while since I have been on here, and can say its grown alot with more people, good to see the awareness is out there.

Katie, I have also been having heart problems and I to need to get a heart monitor attached to me, I can be sitting down all relaxed and then all of a sudden my heart will beat so fast for no reason, oncologist said could be from my radio i had done but not harmless, but need to get it checked out.

your due for your 5 operation, hopefully its your last one and you can look forward to no more surgery, wishing and praying all works well for you.

I booked for a reconstruction surgeon and got cold feet, couldnt deal with it at the moment, so re-scheduled it for August, hopfully will be ready then.

As for me I saw the oncologist last week and my ct scans come back with no growth in the liver, so was good news, said he only wants to view me once a year unless I see and feel changes, how often do you see yours? also asked if I was allowed to be on any contraceptive, he looked into it and said no reason why I couldn as PT has got nothing to do with hormones, I did have the iud previous but reluctant to take anything, but dont want any more babies, any suggestions?

Welcome Lydia, was your head cancer ralated to PT?

How are you Helen?

Take care all,

Vicki Kontalis