Phyllodes Tumor - Anyone else out there?

Hi Katie

Sounds like you have been on a roller coaster ride and still going.

Im so glad you have made the decision for mastectomy, this will giive the clear margins and peace of mind.

You are having skin and nipple sparing mastectomy, which my dr told me the nipple needed to be removed, saying it could get into the milk duct which is connected to the nipple,and wanted to be 100% sure, so your lucky you get to keep it. maybe it was the fact mine was 8.5 cm x 4.5cm, kind of big..

Having clear margins I would have thought I was in the clear, but dosent work like that with the phyllodes, can come back in other areas. so i have decided and spoken to the oncologist and he felt it was a good decision to do the radio as some research has shown that a malignant phyllodes tumor has less recurrence rate with adjuvant radiotherapy, so again time will only tell. but other research show both chemo and radio do not work on phyllodes, it can be frustrating and always in the back on my head, maybe I should keep away from "google"

I am praying for you and wishing you all the best for the 3rd of Feb, you will be fine, just think possitive and know that you wont have it growing in you anymore...all gone.

Please send me a message would love to hear from you again, and tell me about the reconstruction process, so I can have one in due time.

take care of yourself

Vicki