Forum Discussion
JJ70
8 years agoMember
Peripheral Neuropathy
Hi All,
I have started this new thread because I am worried.
I am 2 months out of chemo (Dose Dense 4xAC 4xPaclitaxol) and the neuropathy in my feet is getting worse. From the balls of my feet to my toes - feel like blocks of wood!
When I sleep, I sleep o n my side with my hands under the pillow. Recently (in the last week) I have been waking up wth pins and needles in my hands and fingers. When I put my hands down by my sides it goes away, but I naturally put my hands back there again and yep, more pins and needles. Do not notice anything during the day in my hands.
By the end of the day my feet are REALLY sore, red, swollen etc. All my oncologist said (on last meeting a few weeks back) was to moisturise. I haven't been doing it twice a day like she said to, so I will increase that, but any other tips? Should I be worried that it seems to be getting worse rather than better?
I have started this new thread because I am worried.
I am 2 months out of chemo (Dose Dense 4xAC 4xPaclitaxol) and the neuropathy in my feet is getting worse. From the balls of my feet to my toes - feel like blocks of wood!
When I sleep, I sleep o n my side with my hands under the pillow. Recently (in the last week) I have been waking up wth pins and needles in my hands and fingers. When I put my hands down by my sides it goes away, but I naturally put my hands back there again and yep, more pins and needles. Do not notice anything during the day in my hands.
By the end of the day my feet are REALLY sore, red, swollen etc. All my oncologist said (on last meeting a few weeks back) was to moisturise. I haven't been doing it twice a day like she said to, so I will increase that, but any other tips? Should I be worried that it seems to be getting worse rather than better?
160 Replies
- Kiwi_AngelMember@JJ70 u hwve had way too much in your plate to worry about my chemo. Because mine was every 21 days and the type of chemo I could work, if it had been a different type and dose sense I doubt I could of.
- JJ70MemberHi @Kiwi Angel. That sounds great about your feet. Hoping it does not return for you. x Sorry I think I remember now that your last chemo was the day before my surgery - my head was other places between then and now. Yes, relax and rest your feet and body ready for work on Wednesday. Hats off to anyone who is working throughout Chemo. I suppose it depends on your chemo regime and your job, but there is no way I could have been anything but a burden at work whilst I was in the midst of it. Just when I was feeling better, my next lot would be due (dose dense).
Lmc1310 that is good news - I may have to wait months, but if at 1 year yours has sorted itself out - that is something positive for my brain to remember. - Kiwi_AngelMember@JJ70. Had my last TC on Monday so I am just a about a week out. Had crappy symptoms for most of the week and then overdid it yesterday so I’m struggling abit today but it’s my own fault. Off work till Wednesday though so have another couple of days to recover and then it is all onward and upward. Glad your feet are feeling better. I just seem to get the numb tingly feet just after the chemo but they are starting to get better now. When do u get to go home?
- Lmc1310MemberHello, nearly 12 mths post ac and taxol and thankfully neuropathy almost gone. Oncologist reduced dose for last couple of taxol. Best wishes and hugs
- JJ70Member
- JJ70MemberThe neuropathy in my feet has been better in hospital. No sure which of these three changes are to thank, or it could be a combination of all three:
Pressure stockings
Off my feet in bed a lot
Warm room
Straight after op. my left foot was quite bad. They wanted the bed in that banana shape (FOOT AND HEAD END BOTH INCLINED) but my foot was yellng out "NO" pretty loudly, so we arranged pillows under my knees for my abdominal incision and this also allowed my foot to be lowered. - minimum67MemberThanks so much poodlejules and soldier crab.Im not much of a sewer but I could get some friends onto it.
- poodlejulesMemberHi @minimum67. I looked for gloves last year when I did the 12 weeks of Taxol and they were all sold out on Amazon and my hospital had stopped using them . Never thought to try eBay @SoldierCrab ! So I googled and found out about women using good old ice (yes the frozen water kind!) as a preventative. I used basic disposable gloves on my hands and wrapped my feet in basic plastic shopping bags and plunged them in ice in old cake containers (!) (my size 7 feet fitted nicely) for the hour. It was cold and painful to start but then they numb and you don't feel anything. I don't know if it was just me but I didn't get any neuropathy and didn't lose any nails. A friend of mine is doing her Taxol now and has fashioned a couple of supermarket frozen goods bags(you know the blue ones with the silver lining) into boots and has ice gel packs in freezer bags for hands...very clever . My doctors pooed pooed the idea and said they had no evidence ice worked and kept telling me some women don't get to number 12 dose because of the neuropathy, so I was happy to prove them wrong! You could always take Panadol for pain while icing as the women using the cold caps do but I always had someone with me to talk to and distract me so the hour went quickly!
Good luck with it all x - SoldierCrabMemberthose gloves https://www.ebay.com.au/itm/ELASTO-GEL-COLD-ICE-HEAT-HOT-THERAPY-GLOVE-HAND-MITT-/252442001746
- JJ70MemberHi minimum67. I haven't heard of those. I have heard amino acids and Vit B treatments are good preventative measures. My oncologist didn't take any preventative measures, except to modify my last dose so as to avoid permanent damage.
It remains a concern for me 2 months post chemo. In fact it has gotten worse but my oncologist said it is common for it to get worse beforeit gets better so I feel a bit more at ease about it