Forum Discussion
Peripheral Neuropathy
Hi All,
I have started this new thread because I am worried.
I am 2 months out of chemo (Dose Dense 4xAC 4xPaclitaxol) and the neuropathy in my feet is getting worse. From the balls of my feet to my toes - feel like blocks of wood!
When I sleep, I sleep o n my side with my hands under the pillow. Recently (in the last week) I have been waking up wth pins and needles in my hands and fingers. When I put my hands down by my sides it goes away, but I naturally put my hands back there again and yep, more pins and needles. Do not notice anything during the day in my hands.
By the end of the day my feet are REALLY sore, red, swollen etc. All my oncologist said (on last meeting a few weeks back) was to moisturise. I haven't been doing it twice a day like she said to, so I will increase that, but any other tips? Should I be worried that it seems to be getting worse rather than better?
I have started this new thread because I am worried.
I am 2 months out of chemo (Dose Dense 4xAC 4xPaclitaxol) and the neuropathy in my feet is getting worse. From the balls of my feet to my toes - feel like blocks of wood!
When I sleep, I sleep o n my side with my hands under the pillow. Recently (in the last week) I have been waking up wth pins and needles in my hands and fingers. When I put my hands down by my sides it goes away, but I naturally put my hands back there again and yep, more pins and needles. Do not notice anything during the day in my hands.
By the end of the day my feet are REALLY sore, red, swollen etc. All my oncologist said (on last meeting a few weeks back) was to moisturise. I haven't been doing it twice a day like she said to, so I will increase that, but any other tips? Should I be worried that it seems to be getting worse rather than better?
160 Replies
- Has anyone used Elastogel gloves and socks to prevent?THere are some studies suggesting it might help and if so where do you get them from.Im about to start Palitaxiel 8th June and Im nervouse
- Thanks Moira. Yes exercise and massage I am doing regularly.
- I find regular foot massage really seems to help -anything that encourages blood circulation should assist but be careful of hot water as you may not be able to judge the temperature. Regular walking when I can has also helped but still there after 6 months since Paklitakel ceased. All the best
- @JJ70 thanks for that - I will definitely mention it!!
- @Kiwi Angel please tell your oncologist about this before your last dose. My neuropathy started after my second last paclitaxel and my last dose was slightly reduced because of the beginnings of neuropathy in my feet as my oncologist didn't want it to be permanent. I am hoping that it is not!
PeterB that sucks! I am sorry that your neuropathy is still with you after 6 years.. :( - 6+ years after finishing chemo, still got it in my feet. Pressure on my feet, feels like pins a d neecles, no pressure get a burning feeling. Couldnt walk a straigh lin e if you paid me. Just have to adapt and put up with it.
- @Blondy "Fatties"?
- Neuropathy certainly put an end to my stiletto wearing days. I finally found a longed for pair of nude pumps.. Stood up in the shop to test them out. Ye gods. Give me a good ol pair of fatties. Went home and turfed out all the heels.
- During my chemo I have that this for a few days post cycle on my toes and the bottom of my feet but after my third dose it has hung round and is worse when my feet are cold. Having my final dose on Monday so hope it resolves after that.
- Hi @JJ70, my GP prescribed the meds, because I’ve finished active treatment. I’m pretty sure your oncologist could help you, or your GP. I like that I can get to see my GP when I need to. There seems to be a range of meds available, but they do have some side effects, such as being tired, and putting on weight sometimes. The other thing that has helped is time. The side effects have reduced over time. Let me know how you go.
