Forum Discussion
Peripheral Neuropathy
Hi All,
I have started this new thread because I am worried.
I am 2 months out of chemo (Dose Dense 4xAC 4xPaclitaxol) and the neuropathy in my feet is getting worse. From the balls of my feet to my toes - feel like blocks of wood!
When I sleep, I sleep o n my side with my hands under the pillow. Recently (in the last week) I have been waking up wth pins and needles in my hands and fingers. When I put my hands down by my sides it goes away, but I naturally put my hands back there again and yep, more pins and needles. Do not notice anything during the day in my hands.
By the end of the day my feet are REALLY sore, red, swollen etc. All my oncologist said (on last meeting a few weeks back) was to moisturise. I haven't been doing it twice a day like she said to, so I will increase that, but any other tips? Should I be worried that it seems to be getting worse rather than better?
I have started this new thread because I am worried.
I am 2 months out of chemo (Dose Dense 4xAC 4xPaclitaxol) and the neuropathy in my feet is getting worse. From the balls of my feet to my toes - feel like blocks of wood!
When I sleep, I sleep o n my side with my hands under the pillow. Recently (in the last week) I have been waking up wth pins and needles in my hands and fingers. When I put my hands down by my sides it goes away, but I naturally put my hands back there again and yep, more pins and needles. Do not notice anything during the day in my hands.
By the end of the day my feet are REALLY sore, red, swollen etc. All my oncologist said (on last meeting a few weeks back) was to moisturise. I haven't been doing it twice a day like she said to, so I will increase that, but any other tips? Should I be worried that it seems to be getting worse rather than better?
160 Replies
- Great looking group, @JJ70 - I can understand you toe tapping - perhaps the 5k walks were a tad icky tho! :(
Aren't sore feet the pits - they affect you 24/7 - even in bed! I find the sheets just resting on them (particularly the right foot) to be incredibly painful! grrr . - Dear @JJ70, I just looked up Winterbourne on Youtube and had a listen - very polished, and great harmonies! Hope your feet are feeling better.
- @JJ70
The young lady will go far! - @"Annie C" She was very entrepreneurial and had a price list for different lengths of time. I said - 'Darling, this is something you do just because you love the person who's in pain.' Charlotte decided that sure - that was all fine and good, but you only get 1 min on each foot. :D
- PS
Good home assured! - @JJ70
Oh please may I borrow that dear youngun. Maybe she could work magic on my very tender left hand. - Why? Why did you jump around on us in heeled boots like a mad banchee at the Winterbourne concert on Friday night, then proceed to walk on us for 5km yesterday, stand on us a lot at a party last night and walk us another 5km today on a Type1 diabetes charity walk? We have been telling you all weekend to rest us Now we are red, angry and swollen and YELLING at you that we are still suffering from peripheral naturopathy and you're finally listening. Now you can hobble about as penance.
- I read a five year old report suggesting it was timely to look at other side effects of PN as well as pain. Pain is pain and needs to be alleviated but the report seemed to confirm that many with long lasting PN symptoms aren’t experiencing pain but a whole range of other sensations with their own limitations and challenges. But to be honest, I can find very little more on this aspect. Be interested if anyone else has.
- I can’t believe how painful my feet are just now and don’t think I can call it PN .... specially as I didn’t have chemo. I am blaming my AIs .... I’ve been on Arimidex for some months now with no real side effects but in the last 3 weeks it has become 24/7. I will mention it to my gp on Wed when I finally get my mammogram and ultrasound results (non urgent appointment.)
