Forum Discussion
Peripheral Neuropathy
Hi All,
I have started this new thread because I am worried.
I am 2 months out of chemo (Dose Dense 4xAC 4xPaclitaxol) and the neuropathy in my feet is getting worse. From the balls of my feet to my toes - feel like blocks of wood!
When I sleep, I sleep o n my side with my hands under the pillow. Recently (in the last week) I have been waking up wth pins and needles in my hands and fingers. When I put my hands down by my sides it goes away, but I naturally put my hands back there again and yep, more pins and needles. Do not notice anything during the day in my hands.
By the end of the day my feet are REALLY sore, red, swollen etc. All my oncologist said (on last meeting a few weeks back) was to moisturise. I haven't been doing it twice a day like she said to, so I will increase that, but any other tips? Should I be worried that it seems to be getting worse rather than better?
I have started this new thread because I am worried.
I am 2 months out of chemo (Dose Dense 4xAC 4xPaclitaxol) and the neuropathy in my feet is getting worse. From the balls of my feet to my toes - feel like blocks of wood!
When I sleep, I sleep o n my side with my hands under the pillow. Recently (in the last week) I have been waking up wth pins and needles in my hands and fingers. When I put my hands down by my sides it goes away, but I naturally put my hands back there again and yep, more pins and needles. Do not notice anything during the day in my hands.
By the end of the day my feet are REALLY sore, red, swollen etc. All my oncologist said (on last meeting a few weeks back) was to moisturise. I haven't been doing it twice a day like she said to, so I will increase that, but any other tips? Should I be worried that it seems to be getting worse rather than better?
160 Replies
- @JJ70 That's no good. Have you read @JoeyLiz's suggestion for PN today?
- My feet have been super sensitive today....really struggling with them through Winter.
- So lovely to 'hear' your voice again @Afraser. K xox
- Oh damn you peripheral neuropathy! You are much worse in Winter. You're a badass!
- Serves me right for peeking! I've been away, and am still a bit away but to the question - Vitamin B was what my oncologist said might help. I think it did, and still take it daily but it's really hard to know, it might have been that the timing was right rather than the Vitamin B and my feet were going to get better anyway. My neuropathy is still there five years on (sorry folks!). Initially I had severe tingling/burning, my toes were really painful and I dreaded anyone standing on them in a tram as I would have simply screamed. But that improved after a couple of months. My feet are still hyper-sensitive to some surfaces and numb to others. It's no worse in winter though. I don't have any pain and my feet don't get particularly cold, but there is still a gap in feeling between the beginning of my toes and the tips and the soles are a bit odd. I get cramps in my toes more often. And I really don't trust myself running (so I don't). It doesn't wreck my life and is only occasionally annoying. Hang in there.
- @Afraser
what is it you were taking ? please
Vit B ?
I am nearly 6 yrs out and winter is the worst for me. with my neuropathy.... - @JJ70 my neuropathy has come back 2 months after chemo, my Med Onc suggested alpha-lipoec acid, only started it yesterday so can’t tell you if it helps yet
- Oh damn you peripheral neuropathy! You are much worse in Winter. You're a badass!
- Oh I love these @JJ70 - thank you so much! I'm going to check it out and order ASAP! xx
- @eastmum @JJ70 I have one of their head wraps too. It's one of my favourites.
