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riss81's avatar
riss81
Member
2 years ago

Pax treatment

Hi all
I have been having AC treatment for tripple Neg Breast cancer. I have one last one to go then move on to weekly paxlataxle. I have been told that the weekly treatment is not as bad as the AC but im sceptical. Has any one out there had it and how did they go?
  • Hi riss81
    like the others above i found the taxol…. Much easier. Though i’m not  triple negative.  I had same side effects my nose didn’t bleed too bad just spotting. And the taste issue was fun trying to find foods that i could taste   I ended up eating what i could. I only got through to round 8 and was pulled off due mainly to the neuropathy. If you have something strange happening just tell the nurse or Dr   They will advise you if it is anything to be concerned about. 
    Hope all is easy going for you
  • Hello, I finished 4 rounds of AC just before Christmas which were tough & I couldn't work as the fatigue, nausea & accumulation was harsh. I'm at week 5 of 12 paclitaxel which is much easier & I returned to work last week. I'm experiencing slight altered sensation in my fingers & just 2 toes, my finger nails are tender & changing colour but revitanail & almond oil that were in a 2 pack are helping, taste is affected but on the whole it's much better than AC.
    Good luck & hope it's not too bad for you each journey is unique & positivity helps ❤️
  • Hi riss81. I have TNBC and had paclitaxel first with carboplatin as well. I was on steroids for my liver and didn’t find this treatment too bad. I have started on AC now and I am finding that much harder. I am very nauseous and so tired.  Paclitaxel was easier for me. 
  • I did 12 weeks of Paxlitaxel June-Aug 2023. I tolerated it OK in that it didn’t make me nauseous, but I did get bleeding noses towards the end and taste was impacted. I also got some peripheral neuropathy in my fingers (started with thumbs). It didn’t get bad enough to impact my treatment and doses. I did get an unpleasant rash / dry skin on my face (forehead and cheeks), but used Aveeno moisturiser as recommended by the oncology nurses. 
  • I confess I did not like paclitaxel (or Taxol) but I also know that most people find it easier than A/C. My oncologist mentioned that paclitaxel is harder on soft tissue and to expect side effects with eyes, nose or mouth. My eyes were fine but I suffered crusty and rather bloody noses from time to
    time and lost my taste buds. All came good as soon as I finished. It’s important to try and eat well even if you can’t taste much - I was lucky, in spite of the conventional wisdom that spicy food helps, it didn’t but I could taste salad, eggs, avocado and bananas! The one thing to
    take careful note of is tingling in the extremities, toes and fingers. Paclitaxel can cause peripheral neuropathy, a distortion of the feeling in the nerve endings. It will normally sort itself out after treatment but not always. A reduction in dose or shorter treatment may be called for. Many don’t get it at all. Best wishes for the next steps.