Forum Discussion
Paget's disease
I was diagnosed with Paget's disease of the nipple eight months after diagnosing myself through the internet. Misdiagnosed first time round.
I had surgery followed by 7 weeks of radiotherapy.
I was diagnosed in April 2009 and had radiotherapy from early August to early October 2009.
The reason for my blog is to make it easier for anyone that is looking for someone to talk to about Paget's disease as I realised it is not that easy to find my page. Paget's disease is a rare form of cancer therefore there is not much support available for women newly diagnosed with it.
Love Liz xx
77 Replies
- Thanks for your msg . The Nursing Mothers ointment wasnt doing anything so I started using an anti bacterial ointment they give me for other skin problems . It seems to be working . Thanks for all the help .
- Well @Liz4, am very happy for you if that's the case (not happy for you that you have auto immune issues that give you these symptoms but that you don't have cancer). Crossing fingers for you that the cream and exfoliation helps. Please let us know how you get on. Hugs. Xx Cath
- Hi, saw the new surgeon and had an ultrasound . He said he couldnt see cancer . He said he didnt think it was Pagets . The crusting is also on the other nipple and he suggested exfoliating under the shower with a face washer . Then apply the cream nursing mothers use for nipples . Otherwise my options were to have the nipple removed . He thinks its possibly due to my auto immune diseases both involve the skin . I think its going to take a while to get rid of . He said the surgeon who removed the milk ducts was a new surgeon .. Thanks for all your help again .
- Yes...and hopefully a solution will be found for you this time @Liz4
