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ymewhynotme's avatar
ymewhynotme
Member
14 years ago

Paget's disease

I was diagnosed with Paget's disease of the nipple eight months after diagnosing myself through the internet. Misdiagnosed first time round.

I had surgery followed by 7 weeks of radiotherapy.

I was diagnosed in April 2009 and had radiotherapy from early August to early October 2009. 

The reason for my blog is to make it easier for anyone that is looking for someone to talk to about Paget's disease as I realised it is not that easy to find my page. Paget's disease is a rare form of cancer therefore there is not much support available for women newly diagnosed with it.

Love Liz xx

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  • ymewhynotme's avatar
    ymewhynotme
    Member
    14 years ago

    Hi Tanya,

    Thank you. I  wish you the same.

    I just thought I should put something in a blog for Paget's disease as it is so rare.

    I am going to have my aerolea tattooed in the next few months.

    Cheers,

    Liz xx

     

  • moira1's avatar
    moira1
    Member
    14 years ago

    hi there, thanks for joining us here on the site, We welcome everyone here, it is so good especially to be able to get and give support, we have all had bc, we know the feelings and fears of the journey. and although we cant give medical advice, we can offer support, and hints and tips which have made the journey more bearable, so once again like we say on here, by helping ourselves we can also help others. Regards Moira

  • Tanya's avatar
    Tanya
    Member
    14 years ago

    Great work Liz!!

    I have just directed Sue F to your blog too, It is so important to feel supported especially when a minority like Pagets.

    Wishing you a happy and healthy 2012 Too.  xx

    Tanya