Paget's disease

Thanks for responding Marg , I got confused and went on another forum just now . I am awake at 5.am trying to figure out what the hell happened . I keep thinking of the words of this lovely surgeon and how in no way did I do what he accuse me of ,  I just followed his advice .  I have read and re-read the letter the GP gave me from the surgeon and its disgraceful . I dont know what to do . I probably cant take more testing or surgery . I suppose I want someone to say i either have it or I dont but I cant go through the surgery to find out as I am so much physicall worse . This is negligence and lies and I stood a better chance three years ago than I do now .  Then to have a letter disappear from my file ?   I have had 30 yrs of bad health and I have had a lot said to my face and can stand up for myself but to have it in a letter with lies that goes onto a file is disgusting . Thanks I will make the new appointment with the correct details of my health in the new referral and see what comes of it .