Paget's disease

Hello , its been a while since I went through the Pagets investigations . I had said on here that the surgeon and the referring GP were both reluctant to send me for second opinions . So here I am 3 years later and they had removed the milk ducts and found them benign but the nipple has continued to be crusty and discouloured . As I kept getting refused a referral and having other medical stuff going on I didnt concentrate on it much . I have a muscular disease that takes a lot of my energy but also has a high Tumour rate with it . Its called Dermatomyositis a rare auto immune disease .  As the nipple got worse lately I went back to the original clinic that referred me yesterday the 1st May 2017.  I saw a different GP and he asked if I wanted more Radical Surgery and I said NO i just want another opinion as its never cleared up .   I said I liked the surgeon but he gave me a referral to someone else and handed me a copy of a letter that was on my file . This never happens but I thought it was to go with the referral so I only read it in the car as  he hadnt said anything . Its a copy of the letter from the surgeon to the first GP stating in five paragraphs that even though he advised me of the benign nature I was still "Motivated" to have further surgery. He then said I was very "Motivated" to undergo a total duct excision . To this end he has consented as it would be both diagnostic and therapeutic.  He claims it had no signs of crusting when he examined me after the biopsy . This is total lies , its never cleared up and I certainly didnt feel Motivated to have the surgery or anything else .  The gp I saw yesterday didnt say much but did mention the letter after the excision seems to be missing from my file .  I think he has given me the letter to let me see the way I was portrayed in it . First time a GP has ever given me a copy of a letter .  I am dumbfounded and in the 3 years since I have gone down considerably in my health so I assume any further surgery now would not be attempted . Its never cleared up at any time and has only gotten worse but I thought I had done everything I could to get answers .  I will make an appointment with the new surgeon but I doubt I will be going through anymore testing . I am so discouraged and you were all in my mind over the last 3 years and the stories of how you all fought to get answers .  Thanks again any comments will be appreciated as I am lost .