Paget's disease
I was diagnosed with Paget's disease of the nipple eight months after diagnosing myself through the internet. Misdiagnosed first time round.
I had surgery followed by 7 weeks of radiotherapy.
I w...
Forum Discussion
Hi familyfirst,
I am sorry to say that it does sound like Paget's to me. I had the same symptoms and it does not show up on a mammogram the only way to diagnose it is a biopsy. I went to a breast surgeon who ordered a mammogram and told me I was fine just use lucas paw paw ointment.
Eight months later my nipple started to go black. I went to another breast surgeon who said she was not convinced it was Paget's as I was only 48 at the time. It is usually older women that get it and it is very rare. She decided to do a biopsy anyway and sure enough it was Paget's.
I had surgery where they took the nipple and aerolea back to the chest wall and reconstruction at the same time. I had no underlying breast cancer so I had 7 weeks of radiotherapy around three months after surgery.
It is 5 years now and all is good.
Make sure you have the biopsy and take care. Please let me know how you go. It is not the worst type of cancer you can have if that is any help. I guess not as it is pretty scarey.
Bless you,
Liz x