Paget's disease

Thanks Sue . I was wondering if anyone here had other health problems when they were seeking diagnosis ? I have a couple of rare (ugh) auto-immune diseases . One of them involves the muscles causing weakness & wasting . I dropped a great deal of weight a couple of years ago and I thought it had stabilised but its going down rapidly again . I am supposed to have gastroscopy and colonoscopy to see if I have more issues going on. Have had so many cancer tests over the years I am worn out . My initial diagnosis has a high rate of cancer . I have the crusting again and odd shape to the nipple . I saw on the US site that an MRI was often used with Paget's . Should I push for that if he says it is all clear from the biopsies . If its rare and unusual to have it outside in then its bound to be me . Lol . Just want to have right things to ask as I have the feeling I will need to push this further . My GP hasn't even enquired what happened . I don't want gastro testing til I get this sorted sorry for the long post . Will let you know results later this month . Thanks .