Paget's disease

Hi, I have been to a GP who thought I had Paget's of the nipple. Both nipples have a yellow crust and are sore and inflamed, one is sometimes inverted. He sent me for mammogram and ultrasound which were all clear but he wants me to see a breast surgeon. I cant get in to see her for four months so returned to my GP who said I dont need a surgeon and is sending me to a Dermatologist. I had extensive tests in 1997 at a breast clinic where they decided not to biopsy. My problem is I suffer from a rare auto-immune disease involving skin and muscles , it also comes with a high cancer rate. Its called Dermatomyositis. I have been turned inside out looking for the tumour in the early stages of diagnosis. Have had this debilitating illness for 26 years. Reading the info on here I am looking for help. Should I see my disease specialist and ask him to send me to surgeon a bit quicker or go down the skin specialist road ? I have done all this before with a rare disease and I cant face being wrongly diagnosed or misdiagnosed again. I dont have the energy to see lots of docs and get nowhere. There is something wrong with my nipples , I know it but it was shrugged off as probably being connected with my disease. I did ask an auto-immune expert in the US and he said Pagets has nothing to do with my disease. Can anyone offer any advice on what I should do ? I am used to being my own advocate medically.