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Sue_F's avatar
Sue_F
Member
14 years ago

Pagets Disease

I was diagnosed with Pagets Disease of the nipple early Oct and had a Mastectomy on 25th Nov. I was wondering if any others have had the same diagnosis as I understand it is not common.

16 Replies

  • Hi Sue F. Thanks for sharing. I am probably now the 3rd other woman with this diagnoses on this site. I just learnt the term this week gone by. A rash on my nipple and surrounding area that never cleared after first visiting a dr. three & a half years ago. Three doctors later and three topical creams later it would appear that finally I have some answers. Biopsy complete & results on Wednesday. Mammogram today in about 8 hrs.  Fear the worst as images on internet mirror my own breast nipple & aerola area.  Could only google it all completely once Dr gave me the term :(. Thanks for reading. 

  • Great that you have had a reply already.  I see another post from earlier today from ymeynotme that is Pagets too just incase you missed it!!

     

    Tanya xx

  • Thanks Tanya for your reply, I did a search and found two that have had Pagets . I have made contact and had a reply which is so like my diagnosis. Thanks for your help this is a great site. Love Sue
  • Hi Sue, I was just reading up on Pagets disease of the nipple, and as you said, it is very rare. This is a good site, as there is likely to be someone here that has the same as you and will make contact with you. Do you have to have any more treatment other than your mastectomy? Wishing you a very happy and healthy 2012. Love Chris xx
  • Hi Sue, I was just reading up on Pagets disease of the nipple, and as you said, it is very rare. This is a good site, as there is likely to be someone here that has the same as you and will make contact with you. Do you have to have any more treatment other than your mastectomy? Wishing you a very happy and healthy 2012. Love Chris xx